CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 1122

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2611-C15522	C15522	Headache gene present indicator	Indicator of whether a gene associated with headache was present after genetic testing	Supplemental	DNA Elements	False	Headache	Headache
F2610-C15632	C15632	Premenarchal indicator	Whether the participant/subject is currently premenarchal, the period before a female's first menstrual cycle	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2617-C16023	C16023	Pregnancy prior history births pre-term count	Count of the total number of pregnancies the participant/subject carried for less than a full term (	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15591	C15591	Imaging patient movement quality method text	Description of image quality participant/subject movement monitoring method used	Supplemental	Anatomical Imaging	False	Headache	Headache
F2621-C15988	C15988	Employment paid job count	The number of paid jobs the participant/subject has	Supplemental	Social Status	False	Headache	Headache
F2673-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2617-C17994	C17994	Pregnancy complication text	Text specifying any complications the participant/subject experienced during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15633	C15633	Imaging volumetric result	Results of volumetric measures/comparison of the image study	Supplemental	Anatomical Imaging	False	Headache	Headache
F2621-C15996	C15996	Caretaker of child type	Indicates who takes care of the child or adolescent	Supplemental	Social Status	False	Headache	Headache
F2615-C15544	C15544	Imaging stimulation intensity value	Stimulation intensity used on imaging	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2620-C18023	C18023	Pain intensity stimulation result	Scale of 0-10 used to measure the intensity of the pain resulting from stimulation	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2673-C15975	C15975	Headache post initial study medication time interval	The time interval after taking initial study medication for headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C18615	C18615	Imaging analysis diffusion measurement type	Type of analysis approach for diffusion tensor imaging (DTI) measurement	Supplemental	Anatomical Imaging	False	Headache	Headache
F2614-C15555	C15555	Imaging visual analysis performed indicator	Whether visual analysis was performed while blind to clinical data	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2673-C19034	C19034	Headache or migraine medication taken other text	The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C19074	C19074	Imaging analysis diffusion measurement other text	The free-text field related to 'Imaging analysis diffusion measurement type' specifying other text. Type of analysis approach for diffusion tensor imaging (DTI) measurement	Supplemental	Anatomical Imaging	False	Headache	Headache
F2622-C15552	C15552	Imaging stimuli duration	Duration of stimuli used on imaging test	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2610-C15604	C15604	Headache severity prior sample collection score	The score rating of the severity of the participant/subject's last headache prior to sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2622-C15589	C15589	Stimulus waveform type	The type of stimulus waveform used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2617-C16013	C16013	Pregnancy estimated delivery date ultrasound based indicator	Indicator of whether the estimated delivery date is based on an ultrasound examination	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15362	C15362	Imaging QA/QC performed indicator	Was image-based QA/QC performed?	Supplemental	Anatomical Imaging	False	Headache	Headache
F2620-C15923	C15923	Quantitative sensory testing maximum stimuli duration unit of measure	The units used to measure maximum stimuli	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C18011	C18011	Imaging motion correction technique pass criteria text	Text of correction technique and pass criteria text	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16208	C16208	Family history medical condition second-degree relative type	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C16046	C16046	Pregnancy labor delivery complication indicator	Indicator of whether there were complications during labor/delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache

Displaying 151 - 175 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.