CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 23 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C56035	Genetic test result source type other text	The free-text field related to 'Genetic test result source type', specifying another source of the subject's test results	Supplemental	DNA Elements	False	Headache	Headache
C56038	Genetic test performed other text	The free-text field specifying the other genetic test that was performed	Supplemental	DNA Elements	False	Headache	Headache
C10845	Gene screened indicator	Indicator whether the participant/subject was screened for the specific gene mutation (e.g., Superoxide dismutase 1, Fused in sarcoma, TAR DNA binding protein) commonly seen in the disease or disorder	Supplemental	DNA Elements	False	Headache	Headache
C10846	Gene variant or mutation indicator	Indicator whether a variant or mutation was found in the common gene screened in the participant/subject for the disease or disorder	Supplemental	DNA Elements	False	Headache	Headache
C15539	Gene variant or mutation type	The type of genetic variant or mutation shown	Supplemental	DNA Elements	False	Headache	Headache
C19014	Gene detection method type other text	The free-text field related to 'Gene detection method type' specifying other text. The method used to detect the gene mutation or variant	Supplemental	DNA Elements	False	Headache	Headache
C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Rescue Treatments	False	Headache	Headache
C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Concomitant Medications	False	Headache	Headache
C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Rescue Treatments	False	Headache	Headache
C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Concomitant Medications	False	Headache	Headache
C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Concomitant Medications	False	Headache	Headache
C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Rescue Treatments	False	Headache	Headache
C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Concomitant Medications	False	Headache	Headache
C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Rescue Treatments	False	Headache	Headache
C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Concomitant Medications	False	Headache	Headache
C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Rescue Treatments	False	Headache	Headache
C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Concomitant Medications	False	Headache	Headache
C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Concomitant Medications	False	Headache	Headache
C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Rescue Treatments	False	Headache	Headache
C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental	Concomitant Medications	False	Headache	Headache
C59015	Imaging unsuppress spectrum indicator	Whether an unsuppressed spectrum was captured	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
C59018	Imaging metabolite quantification procedure tool other text	The free-text field related to 'Imaging metabolite quantification procedure tool other text', specifying other text. Type of imaging quantification tool	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
C59014	Imaging voxel anatomic site type other text	The free-text field related to 'Imaging voxel anatomic site type' specifying other text. Type of anatomic site in which the voxel is located (e.g., brain left frontal white matter)	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache

1273 results.

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.