CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 126 - 150 of 1273

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C15902	Weight to height ratio value	Ratio of participant/subject's weight to height	Supplemental	Vital Signs	False	Headache	Headache
C15572	Imaging diffusion direction count	Count of diffusion directions in the associated diffusion imaging study	Supplemental	Anatomical Imaging	False	Headache	Headache
C15925	Quantitative sensory testing examiner count	Number of examiners performing QST throughout the study	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
C14661	Functional Disability Inventory (FDI) - parent form child difficulty up all day scale	Scale determining level of physical trouble or difficulty child experiences when being up all day without a nap or rest, as a part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Headache	Headache
C14681	Pediatric Migraine Disability Assessment (MIDAS) - headache cease home function day count	Count the days you were not able to do things at home (i.e., chores, homework, etc.) in the last 3 months due to a headache, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form	Supplemental-Highly Recommended	Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS)	True	Headache	Headache
C15899	Headache worst pain anatomic site	Location of worst headache pain	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
C15608	Imaging registration technique type	Type of registration technique used	Supplemental	Anatomical Imaging	False	Headache	Headache
C15992	Deployment most recent end date and time	End date of most recent deployment	Supplemental	Social Status	False	Headache	Headache
C15984	Birth order number	Number of the birth order or the sequence of the participant's/subject's birth in the family group	Supplemental	Demographics	False	Headache	Headache
C15530	Imaging evoked potential electrical nociceptive stimulation model name	The name of the electrical nociceptive stimulation model used as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
C14668	Functional Disability Inventory (FDI) - parent form child difficulty run football field scale	Scale determining level of physical trouble or difficulty child experiences running the length of a football field, as a part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Headache	Headache
C15997	Relative first degree total count	Count of the total number of first-degree relatives the participant/subject has	Supplemental	Medical and Family History	False	Headache	Headache
C15976	Headache post initial study medication date and time	The actual time (24 hr clock) after taking initial study medication for headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
C16063	Pregnancy fetal diagnostic test date	Date the fetal diagnostic testing was performed during the pregnancy	Exploratory	Pregnancy Outcome	False	Headache	Headache
C19040	Prenatal testing other text	The free-text field related to 'Prenatal testing type' specifying other text. The type of prenatal testing that was performed for the current pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
C14646	Functional Disability Inventory (FDI) - child form up all day scale	The scale of the child's or adolescent's ability to stay awake all day without taking a nap or rest when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Headache	Headache
C16019	Family history relative first-degree affect count	The number of first-degree relatives affected with the medical condition	Supplemental	Medical and Family History	False	Headache	Headache
C17999	Tocolytic agents required during preterm specification text	Text specifying the tocolytic agents the participant/subject required during preterm labor	Exploratory	Pregnancy Outcome	False	Headache	Headache
C15585	Imaging stimulation type	Type of stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C15565	Imaging angiography time of flight method duration	Time of flight (TOF) method duration	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
C15978	Headache re-start date and time	The time of the day (24 hr clock) that the headache restarted	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
C14654	Functional Disability Inventory (FDI) - child form shopping scale	The scale of the child's or adolescent's ability to go shopping when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Headache	Headache
C15609	Imaging rest duration	The rest duration between multiple evoked functional acquisitions	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C15570	Imaging transcranial magnetic stimulation current direction type	The direction of current used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
C17028	Migraine Disability Assessment (MIDAS) - Headache past three months day count	Count the total number of days in the past three months the participant/subject had headache, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental-Highly Recommended	Migraine Disability Assessment Test (MIDAS)	True	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.