CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2617-C10556	C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental	Pregnancy Information	False	Headache	Headache
F2610-C15618	C15618	Premenopausal indicator	Whether or not the participant/subject is currently in her premenopausal phase	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2620-C15915	C15915	Trial performed count	Number of times test was performed	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15637	C15637	Imaging preprocessing method performed type	Imaging preprocessing method(s) performed	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16006	C16006	Family history first-degree physician diagnosed count	The number of first-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2611-C15549	C15549	Gene amino acid change name	In cases of an genetic variant or mutation, specify the amino acid change	Supplemental	DNA Elements	False	Headache	Headache
F3059-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2620-C15925	C15925	Quantitative sensory testing examiner count	Number of examiners performing QST throughout the study	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C18014	C18014	Imaging analysis assumptions text	Description of the assumptions and settings for the first-level time series analysis	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C19039	C19039	Headache migraine other text	The free-text field related to 'Headache migraine type' specifying other text. Type of headache or migraine	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C16049	C16049	Birth child date and time	Date of birth of participant/subject's most recent live birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2620-C15933	C15933	Quantitative sensory testing stimulus rest period duration unit of measure	The units used to measure duration between stimulus rest periods	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2619-C16060	C16060	Weight delivery mother unit of measure	Units for the measurement of the participant's/subject's weight at the time she gave birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2624-C15967	C15967	Diary day migraine indicator	Indicator of whether the participant/subject thought the headache was a migraine	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2491-C18009	C18009	Imaging threshold rationale text	Text representing the rationale for choosing a certain threshold for the results	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C15592	C15592	Imaging stimulation device model text	Model of device used for stimulation	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2629-C16006	C16006	Family history first-degree physician diagnosed count	The number of first-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C19032	C19032	Headache typical pain other text	The free-text field related to 'Headache typical pain type' specifying other text. Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C17997	C17997	Pregnancy fetus not normal description text	Description of the abnormal pregnancy fetus	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C15536	C15536	Imaging paradigm approach type	The types of approach of imaging paradigm	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C15558	C15558	Imaging angiography method type	Type of angiography method performed	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2629-C17987	C17987	Relative first degree live count unknown indicator	Indicator of the unknown number of living first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C56782	C56782	Headache re-start medication taken type	Type of pain medication(s) taken by participant/subject for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C55936	C55936	Length birth child unit of measure	Measure of the length of the participant/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C15603	C15603	Imaging randomization technique type	The type of randomization technique used during stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.