CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 101 - 125 of 1273

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C16024	Pregnancy prior history birth defect indicator	Indicator of whether a birth defect occurred in any of the participant/subject's previous pregnancies	Supplemental	Pregnancy Information	False	Headache	Headache
C14666	Functional Disability Inventory (FDI) - parent form child difficulty watch tv scale	Scale determining level of physical trouble or difficulty child experiences watching tv, as a part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Headache	Headache
C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
C16060	Weight delivery mother unit of measure	Units for the measurement of the participant's/subject's weight at the time she gave birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
C15967	Diary day migraine indicator	Indicator of whether the participant/subject thought the headache was a migraine	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
C15592	Imaging stimulation device model text	Model of device used for stimulation	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
C17995	Pregnancy infection illness text	Text specifying any infections or illnesses the participant/subject experienced during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
C14644	Functional Disability Inventory (FDI) - child form chore scale	The scale of the child's or adolescent's ability to perform and complete chores at home when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Headache	Headache
C16006	Family history first-degree physician diagnosed count	The number of first-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History	False	Headache	Headache
C19032	Headache typical pain other text	The free-text field related to 'Headache typical pain type' specifying other text. Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
C17997	Pregnancy fetus not normal description text	Description of the abnormal pregnancy fetus	Exploratory	Pregnancy Outcome	False	Headache	Headache
C15536	Imaging paradigm approach type	The types of approach of imaging paradigm	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C15558	Imaging angiography method type	Type of angiography method performed	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
C14652	Functional Disability Inventory (FDI) - child form walk football field scale	The scale of the child's or adolescent's ability to walk the length of a football field when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Headache	Headache
C17987	Relative first degree live count unknown indicator	Indicator of the unknown number of living first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
C17021	Headache Impact Questionnaire (HImQ) - headache changed 3-month other text	Specify the text of change if you answered "Other (Specify)" to the last question, as part of Headache Impact Questionnaire	Exploratory	Headache Impact Questionnaire (HImQ)	True	Headache	Headache
C15621	Menstrual cycle day collection time value	Specify day of cycle (e.g. first day of menses is day 0) at time of sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
C15914	Quantitative sensory testing stimulation anatomic site	Body site stimulated for QST	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
C15901	Height percentile value	The participant/subject's height percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Headache	Headache
C15529	Imaging quality assurance/quality control (QA/QC) implemented techniques text	Free text field to describe the quality assurance techniques implemented	Supplemental	Anatomical Imaging	False	Headache	Headache
C15924	Data point exceed safety parameter indicator	Indicates whether there were any data points that exceeded the safety parameters	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
C14660	Functional Disability Inventory (FDI) - parent form child difficulty eat meal scale	Scale determining level of physical trouble or difficulty child experiences when eating regular meals, as a part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Headache	Headache
C14680	Pediatric Migraine Disability Assessment (MIDAS) - headache decrease school function day count	Count days functioning at less than half your ability in school in the last 3 months due to headaches, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form	Supplemental-Highly Recommended	Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS)	True	Headache	Headache
C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
C15605	Imaging registration technique used indicator	Indicator of whether a registration technique used to calculate the transformation to a standard average brain space	Supplemental	Anatomical Imaging	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.