CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 951 - 975 of 1122

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3060-C59611	C59611	Headache post traumatic start date	Date (and time, if applicable and known) for the start of participant's/subject's post traumatic headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59612	C59612	Headache traumatic brain injury onset delay duration category	Category which represents how long after the participant's/subject's traumatic brain injury that their headaches began	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59613	C59613	Headache after traumatic brain injury worsen delay duration category	Category which represents when the participant's/subject's headaches began to worsen after a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59614	C59614	Headache continuous indicator	Indicator of whether the participant's/subject's headaches have been continuous	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59615	C59615	Headache day per month frequency	Frequency of headaches the participant/subject experienced within the last 30 days	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59616	C59616	Headache day since onset count	Count of days passed since participant's/subject's onset of post traumatic headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C19035	C19035	Headache aura symptom other text	The free-text field related to 'Headache aura symptom type' specifying other text. Type of aura (warning) that a headache was going to start	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C19035	C19035	Headache aura symptom other text	The free-text field related to 'Headache aura symptom type' specifying other text. Type of aura (warning) that a headache was going to start	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2673-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F3060-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59617	C59617	Headache less than 30 day ratio value	Value which represents the headache ratio calculation. Value calculated by dividing the response from Q (a) by Q (b) and multiplying by 100. Applies only to patients that have had post traumatic headache for less than 30 days	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59618	C59618	Headache mild average monthly frequency	Frequency of the average monthly headaches the participant/subject experienced with mild severity	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59619	C59619	Headache moderate average monthly frequency	Frequency of the average monthly headaches the participant/subject experienced with moderate severity	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59620	C59620	Headache severe average monthly frequency	Frequency of the average monthly headaches the participant/subject experienced with severe severity	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59621	C59621	Headache post traumatic complete freedom monthly frequency day count	Count of monthly frequency of headaches the participant/subject experienced completely free from headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59622	C59622	Headache at least 30 days ratio value	Value which represents the headache ratio calculation. Applies only to patients that have had post traumatic headache for at least 30 days	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59623	C59623	Headache after traumatic brain injury frequency change category	Category which represents headache frequency since participant/subject experienced a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59624	C59624	Headache after traumatic brain injury intensity change category	Category which represents headache intensity since participant/subject experienced a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59625	C59625	Week month code	Ordinal week code for the weeks in a single month	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59626	C59626	Headache days per week count	Count of days the participant/subject experienced headaches in a week	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59627	C59627	Month code	Ordinal month code identifying the month within a specified count of months	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59628	C59628	Headache days per month count	Count of the number of days the participant/subject experienced headaches in a month	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59629	C59629	Headache inadequate treatment duration	Duration of participant's/subject's inadequately treated headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.