CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2684-C15969	C15969	Headache or migraine medication taken type	Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16057	C16057	Activity pulse grimace appearance respiration five minute child score	Assessment of a newborn which is recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2629-C16002	C16002	Relative second degree live count	The total number of the participant/subject second-degree living relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C15980	C15980	Headache affected activity type	Types of school or other activities affected by the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16069	C16069	Placenta umbilical cord abnormality indicator	Indicates whether the participant/subject experienced any abnormalities of placenta or umbilical cord	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2629-C16208	C16208	Family history medical condition second-degree relative type	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History	False	Headache	Headache
F2634-C15598	C15598	Imaging stimulation on period duration	Duration on period of the stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2620-C15913	C15913	Quantitative sensory testing stimulation type	Type of QST stimulation	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15635	C15635	Imaging skull stripping performed indicator	Skull stripping performed for anatomical and functional images	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2620-C15923	C15923	Quantitative sensory testing maximum stimuli duration unit of measure	The units used to measure maximum stimuli	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C18011	C18011	Imaging motion correction technique pass criteria text	Text of correction technique and pass criteria text	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16208	C16208	Family history medical condition second-degree relative type	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2684-C15939	C15939	Headache typical level activities affected result	Result of onset of headache in usually daily activities	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2617-C16024	C16024	Pregnancy prior history birth defect indicator	Indicator of whether a birth defect occurred in any of the participant/subject's previous pregnancies	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15594	C15594	Imaging distortions quality method name	Description of image quality image distortion monitoring method used	Supplemental	Anatomical Imaging	False	Headache	Headache
F2621-C15989	C15989	Unemployed reason	Participant's/subject's reason for unemployment	Supplemental	Social Status	False	Headache	Headache
F2673-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2617-C17995	C17995	Pregnancy infection illness text	Text specifying any infections or illnesses the participant/subject experienced during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15636	C15636	Imaging comparison P-values number	P-values used for comparisons between cohorts or the group averages	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C17985	C17985	Military rank enlisted rank other text	Text specifying enlisted ranks other than field grade officer or above, company grade officer, warrant officer, or non-commissioned officer	Supplemental	Social Status	False	Headache	Headache
F2615-C15551	C15551	Imaging evoked potential stimulus type	Type of stimulus used on participant/subject as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2491-C18009	C18009	Imaging threshold rationale text	Text representing the rationale for choosing a certain threshold for the results	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2620-C18024	C18024	Temperature skin unit of measure	The units of measure for participant/subject's baseline skin temperature	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2673-C15976	C15976	Headache post initial study medication date and time	The actual time (24 hr clock) after taking initial study medication for headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.