CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2619-C16044	C16044	Delivery cesarean section reason	Reason for the Cesarean section	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C19013	C19013	Gene unclassified variant shown specify text	The free-text field related to 'Gene unclassified variant shown indicator'. Indicator of whether an unclassified variant shown	Supplemental	DNA Elements	False	Headache	Headache
F2620-C15930	C15930	Quantitative sensory testing stimulus duration unit of measure	The units used to measure duration of stimuli	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2684-C15967	C15967	Diary day migraine indicator	Indicator of whether the participant/subject thought the headache was a migraine	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16056	C16056	Gestational age child value	Time elapsed between the first day of the last normal menstrual period and the day the participant/subject delivered the neonate	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2491-C15639	C15639	Imaging coordinate of significant cluster text	Text representing the coordinate of significant clusters	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2629-C16001	C16001	Relative second degree total count	The total number of the participant/subject second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C15979	C15979	Headache re-start end date and time	The time of the day (24 hr clock) that the headache ended after headache restarted	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16067	C16067	Newborn complication child indicator	Indicates whether there were other newborn complications experienced by the participant's/subject's child	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2625-C15943	C15943	Headache average days per month count	Actual number of headache days per month the participant/subject had in the past 3 months	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2629-C16207	C16207	Family history medical condition first-degree relative type	Relationship of the first-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History	False	Headache	Headache
F2619-C18002	C18002	Placenta umbilical cord abnormality specification text	Text describing placenta or umbilical cord abnormalities	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C15595	C15595	Imaging stimulation device model year date	Model year of device used for stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2610-C15604	C15604	Headache severity prior sample collection score	The score rating of the severity of the participant/subject's last headache prior to sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2622-C15589	C15589	Stimulus waveform type	The type of stimulus waveform used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2617-C16013	C16013	Pregnancy estimated delivery date ultrasound based indicator	Indicator of whether the estimated delivery date is based on an ultrasound examination	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15362	C15362	Imaging QA/QC performed indicator	Was image-based QA/QC performed?	Supplemental	Anatomical Imaging	False	Headache	Headache
F2610-C15632	C15632	Premenarchal indicator	Whether the participant/subject is currently premenarchal, the period before a female's first menstrual cycle	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2617-C16023	C16023	Pregnancy prior history births pre-term count	Count of the total number of pregnancies the participant/subject carried for less than a full term (	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15591	C15591	Imaging patient movement quality method text	Description of image quality participant/subject movement monitoring method used	Supplemental	Anatomical Imaging	False	Headache	Headache
F2621-C15988	C15988	Employment paid job count	The number of paid jobs the participant/subject has	Supplemental	Social Status	False	Headache	Headache
F2673-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2617-C17994	C17994	Pregnancy complication text	Text specifying any complications the participant/subject experienced during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15633	C15633	Imaging volumetric result	Results of volumetric measures/comparison of the image study	Supplemental	Anatomical Imaging	False	Headache	Headache
F2621-C15996	C15996	Caretaker of child type	Indicates who takes care of the child or adolescent	Supplemental	Social Status	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.