CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2629-C56022	C56022	Sibling decease count unknown indicator	The indicator relating to whether or not the subject knows how many deceased siblings he/she has	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56023	C56023	Sibling decease primary cause text	Text describing the primary cause of the subject's sibling's death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56028	C56028	Sibling count	The total number of siblings the subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2611-C56030	C56030	Genetic testing performed family member indicator	The indicator relating to whether any of the subject's family members have had genetic testing	Supplemental	DNA Elements	False	Headache	Headache
F2611-C56032	C56032	Genetic testing performed family member reason txt	Text describing the reason for genetic testing for the subject's family members	Supplemental	DNA Elements	False	Headache	Headache
F2611-C56036	C56036	Genetic testing genotype performed type	The type of genotyping performed in the subject's genetic testing	Supplemental	DNA Elements	False	Headache	Headache
F2618-C56039	C56039	Headache migraine rescue device used name	The name of the rescue device used in the treatment of headache or migraine	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C56040	C56040	Headache migraine rescue device used start date	The start date on which the rescue device was used in the treatment of headache or migraine	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C56041	C56041	Headache migraine rescue device used end date	The end date on which the rescue device was used in the treatment of headache or migraine	Supplemental	Rescue Treatments	False	Headache	Headache
F2624-C56042	C56042	Headache severity scale	The scale of the amount of headache the participant/subject is experiencing	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2618-C56042	C56042	Headache severity scale	The scale of the amount of headache the participant/subject is experiencing	Supplemental	Rescue Treatments	False	Headache	Headache
F2610-C56043	C56043	Headache migraine onset time	The time that the subject's headache started	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2624-C56043	C56043	Headache migraine onset time	The time that the subject's headache started	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2624-C56044	C56044	Headache migraine end time	The time that the subject's headache ended	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2625-C56047	C56047	Migraine without aura five attacks International Classification of Headache Disorders criteria B D indicator	Indicator relating to whether or not the participant/subject had at least 5 migraine attacks fulfilling criteria B-D from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56084	C56084	Migraine with aura characteristic type	Type of characteristics (must choose at least two) that the patient/subject's migraines have	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56048	C56048	Migraine without aura headache attack 72 hours indicator	Indicator relating to whether or not the participant/subject had at a headache attack lasting between 4 and 72 hours that was either untreated or unsuccessfully treated	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56103	C56103	Migraine with aura no better International Classification of Headache Disorders diagnosis indicator	Indicator related to whether or not the patient/subject's condition might be better accounted for by another ICHD-3 diagnosis, and that transient ischaemic attack has been excluded	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56049	C56049	Migraine without aura headache characteristics type	Type of characteristics of the subject/participant's migraine without aura	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56104	C56104	Migraine with aura meet International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject's condition meets the criteria for being a migraine with aura based on International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56050	C56050	Migraine without aura symptom during headache type	Type of symptom the patient/subject reports as having occurred during his or her headache	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56105	C56105	Chronic migraine fulfill International Classification of Headache Disorders criteria B C indicator	Indicator related to whether or not the patient/subject has headaches (tension-type-like and/or migraine) for =15 days per month for >3 months, and fulfills criteria B and C from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56065	C56065	Migraine without aura not better accounted other International Classification of Headache Disorders diagnosis indicator	Indicator of whether the patient/subject's migraine without aura is not better accounted for using another ICHD-3 diagnosis	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56110	C56110	Chronic migraine five attack fulfill International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject has had 5 attacks fulfilling criteria B-D for 1.1 Migraine without aura and/or criteria B and C for 1.2 Migraine with aura from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2625-C56068	C56068	Migraine without aura meet International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject's condition meets the criteria of being a migraine without aura based on International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.