CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 51 - 75 of 1273

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C19032	Headache typical pain other text	The free-text field related to 'Headache typical pain type' specifying other text. Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
C17997	Pregnancy fetus not normal description text	Description of the abnormal pregnancy fetus	Exploratory	Pregnancy Outcome	False	Headache	Headache
C15536	Imaging paradigm approach type	The types of approach of imaging paradigm	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C15558	Imaging angiography method type	Type of angiography method performed	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
C14652	Functional Disability Inventory (FDI) - child form walk football field scale	The scale of the child's or adolescent's ability to walk the length of a football field when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Headache	Headache
C17987	Relative first degree live count unknown indicator	Indicator of the unknown number of living first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
C56782	Headache re-start medication taken type	Type of pain medication(s) taken by participant/subject for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
C55936	Length birth child unit of measure	Measure of the length of the participant/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
C15603	Imaging randomization technique type	The type of randomization technique used during stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C19015	Imaging angiography method other text	The free-text field related to 'Imaging angiography method type' specifying other text. Type of angiography method performed	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
C15556	Imaging transcranial magnetic stimulation Intertrial interval duration value	The duration of the intertrial interval used during transcranial magnetic stimulation (TMS)	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
C17026	Migraine Disability Assessment (MIDAS) - Activity missed past three months day count	Number of days in the last three months the participant/subject has missed family, social, or leisure activities because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental-Highly Recommended	Migraine Disability Assessment Test (MIDAS)	True	Headache	Headache
C15637	Imaging preprocessing method performed type	Imaging preprocessing method(s) performed	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C16006	Family history first-degree physician diagnosed count	The number of first-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
C15901	Height percentile value	The participant/subject's height percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Headache	Headache
C15529	Imaging quality assurance/quality control (QA/QC) implemented techniques text	Free text field to describe the quality assurance techniques implemented	Supplemental	Anatomical Imaging	False	Headache	Headache
C15924	Data point exceed safety parameter indicator	Indicates whether there were any data points that exceeded the safety parameters	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
C14660	Functional Disability Inventory (FDI) - parent form child difficulty eat meal scale	Scale determining level of physical trouble or difficulty child experiences when eating regular meals, as a part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Headache	Headache
C14680	Pediatric Migraine Disability Assessment (MIDAS) - headache decrease school function day count	Count days functioning at less than half your ability in school in the last 3 months due to headaches, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form	Supplemental-Highly Recommended	Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS)	True	Headache	Headache
C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
C15605	Imaging registration technique used indicator	Indicator of whether a registration technique used to calculate the transformation to a standard average brain space	Supplemental	Anatomical Imaging	False	Headache	Headache
C15991	Deployment most recent start date and time	Start date of most recent deployment	Supplemental	Social Status	False	Headache	Headache
C14124	Social security number	A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government	Supplemental	Demographics	False	Headache	Headache
C15525	Imaging evoked potential electrical nociceptive stimulation manufacturer name	The name of the electrical nociceptive stimulation manufacturer used as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
C15932	Quantitative sensory testing stimulus rest period duration	Duration between stimulus rest periods/intertrial intervals	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache

Displaying 51 - 75 of 1273

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.