CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 26 - 50 of 1273

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C15907	Waist circumference measurement unit of measure	Units used to calculate waist participant/subject's hip circumference	Supplemental	Vital Signs	False	Headache	Headache
C15587	Imaging noise quality method text	Description of image quality noise monitoring method used	Supplemental	Anatomical Imaging	False	Headache	Headache
C15987	Employment weekly hour count	The number of employment hours the participant/subject works per week	Supplemental	Social Status	False	Headache	Headache
C15928	Quantitative sensory testing decrease stimulation rate value	Rate of decrease of stimulation used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
C14664	Functional Disability Inventory (FDI) - parent form child difficulty sports scale	Scale determining level of physical trouble or difficulty child experiences doing the activities in gym class, as a part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Headache	Headache
C14684	Pediatric Migraine Disability Assessment (MIDAS) - total score	The total score as part of migraine disability assessment (MIDAS) questionnaire-pediatric form	Supplemental-Highly Recommended	Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS)	True	Headache	Headache
C15636	Imaging comparison P-values number	P-values used for comparisons between cohorts or the group averages	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
C15939	Headache typical level activities affected result	Result of onset of headache in usually daily activities	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
C16175	Menstrual period last date	Date of the participant's/subject's last menstrual period	Supplemental	Pregnancy Information	False	Headache	Headache
C14641	Functional Disability Inventory (FDI) - child form walk bathroom scale	The scale of the child's or adolescent's ability to walk to the bathroom when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Headache	Headache
C16001	Relative second degree total count	The total number of the participant/subject second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
C15979	Headache re-start end date and time	The time of the day (24 hr clock) that the headache ended after headache restarted	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
C16067	Newborn complication child indicator	Indicates whether there were other newborn complications experienced by the participant's/subject's child	Exploratory	Pregnancy Outcome	False	Headache	Headache
C15943	Headache average days per month count	Actual number of headache days per month the participant/subject had in the past 3 months	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
C14649	Functional Disability Inventory (FDI) - child sports scale	The scale of the child's or adolescent's ability to performing activites in gym class when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Headache	Headache
C16207	Family history medical condition first-degree relative type	Relationship of the first-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History	False	Headache	Headache
C18002	Placenta umbilical cord abnormality specification text	Text describing placenta or umbilical cord abnormalities	Exploratory	Pregnancy Outcome	False	Headache	Headache
C15595	Imaging stimulation device model year date	Model year of device used for stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C19027	Headache worst pain anatomic other text	The free-text field related to 'Headache worst pain anatomic site' specifying other text. Location of worst headache pain	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
C17023	Migraine Disability Assessment (MIDAS) - School work productivity reduction past three months day count	Number of days in the last three months the participant/subject has experienced productivity reduction by half or more while at work or school because of their headaches, as part of the Migraine Disability Assessment (MIDAS) Test form.	Supplemental-Highly Recommended	Migraine Disability Assessment Test (MIDAS)	True	Headache	Headache
C15626	Imaging nonstimulation eye assessment indicator	Participant's/subject's eyes status	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C10558	Delivery or pregnancy termination last date and time	Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)	Exploratory	Pregnancy Outcome	False	Headache	Headache
C15522	Headache gene present indicator	Indicator of whether a gene associated with headache was present after genetic testing	Supplemental	DNA Elements	False	Headache	Headache
C15583	Multiple application indicator	The indicator of whether the participant/subject received multiple TMS Imaging applications, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
C16009	Birth control last used date and time	Date (and time, if applicable and known) birth control was last used	Supplemental	Pregnancy Information	False	Headache	Headache

Displaying 26 - 50 of 1273

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.