CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1076 - 1100 of 1122

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3060-C59612	C59612	Headache traumatic brain injury onset delay duration category	Category which represents how long after the participant's/subject's traumatic brain injury that their headaches began	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59624	C59624	Headache after traumatic brain injury intensity change category	Category which represents headache intensity since participant/subject experienced a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59623	C59623	Headache after traumatic brain injury frequency change category	Category which represents headache frequency since participant/subject experienced a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C00220	C00220	Military USA rank category	Category that describes the participant's/subject's rank in the military	Supplemental	Social Status	False	Headache	Headache
F3059-C59642	C59642	Headache aura symptom type frequency category	Category that describes how the aura symptom type effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59642	C59642	Headache aura symptom type frequency category	Category that describes how the aura symptom type effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59636	C59636	Headache associated symptom type frequency category	Category that describes how frequently the headache associated symptom type effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59636	C59636	Headache associated symptom type frequency category	Category that describes how frequently the headache associated symptom type effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59645	C59645	Vomiting without headache frequency category	Category that describes how frequently the headache associated symptom of vomiting affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59647	C59647	Sensitivity to sound without headache frequency category	Category that describes how frequently the headache associated symptom of sensitivity to sound effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59646	C59646	Sensitivity to light without headache frequency category	Category that describes how frequently the headache associated symptom of sensitivity to light effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59648	C59648	Neck pain stiffness without headache frequency category	Category that describes how frequently the headache associated symptom of neck pain/stiffness affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59644	C59644	Nausea without headache frequency category	Category that describes how frequently the headache associated symptom of nausea effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59650	C59650	Gait postural imbalance without headache frequency category	Category that describes how frequently the headache associated symptom of gait and/or postural imbalance affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59649	C59649	Dizziness vertigo without headache frequency category	Category that describes how frequently the headache associated symptom of dizziness and/or vertigo affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59652	C59652	Aura without headache frequency category	Category that describes how frequently the headache associated symptom of aura without headache affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59651	C59651	Memory concentration difficult without symptom frequency category	Category that describes how frequently the headache associated symptom memory/concentration effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C00222	C00222	Job classification category	Category that classifies work performed by participant/subject	Supplemental	Social Status	False	Headache	Headache
F1362-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Exam	False	Headache	Headache
F2629-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Medical and Family History	False	Headache	Headache
F2490-C55907	C55907	Nonsubscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs unsubscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Headache	Headache
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Headache	Headache
F2639-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Headache	Headache
F2621-C00208	C00208	Military USA service branch type	Branch of service in the U.S. military, not including the Commissioned Corps	Supplemental	Social Status	False	Headache	Headache
F2620-C15914	C15914	Quantitative sensory testing stimulation anatomic site	Body site stimulated for QST	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache

Displaying 1076 - 1100 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.