CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 951 - 975 of 1122

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2673-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F3059-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2491-C18524	C18524	Imaging magnetoencephalography evoked field acquisition sedation type	Indicates type of sedative drugs were used to facilitate magnetoencephalography (MEG) acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2630-C13996	C13996	PET localization uptake type	Indicates the degree of absorption or level of ligand tracer binding in the brain scan	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2610-C15624	C15624	Pregnancy indicator	Indicates if the participant/subject is currently pregnant	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2617-C15624	C15624	Pregnancy indicator	Indicates if the participant/subject is currently pregnant	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16008	C16008	Birth control indicator	Indicates if participant uses birth control	Supplemental	Pregnancy Information	False	Headache	Headache
F2611-C15545	C15545	Gene nucleotide change name	In cases of an genetic variant or mutation, specify the nucleotide name	Supplemental	DNA Elements	False	Headache	Headache
F2611-C15549	C15549	Gene amino acid change name	In cases of an genetic variant or mutation, specify the amino acid change	Supplemental	DNA Elements	False	Headache	Headache
F2634-C15637	C15637	Imaging preprocessing method performed type	Imaging preprocessing method(s) performed	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2490-C06108	C06108	Tobacco smoke pack-year value	If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]	Supplemental	Behavioral History	False	Headache	Headache
F2612-C15561	C15561	Imaging angiography contrast enhanced text	If contrast enhanced in angiography, specify the method	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2621-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Core	Social Status	False	Headache	Headache
F2492-C56745	C56745	Cortical evoked potential stimulation parameter somatosensory type	he type of somatosensory stimulation used for the recording of the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F1362-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical Exam	False	Headache	Headache
F2630-C13997	C13997	PET localization distribution pattern type	General pattern of tracer binding/uptake based on the Positron Emission Tomography (PET) scan	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Headache	Headache
F2620-C15931	C15931	Quantitative sensory testing vibration electrical stimuli frequency value	Frequency of vibration or electrical stimuli used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2613-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Concomitant Medications	False	Headache	Headache
F3060-C59618	C59618	Headache mild average monthly frequency	Frequency of the average monthly headaches the participant/subject experienced with mild severity	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59620	C59620	Headache severe average monthly frequency	Frequency of the average monthly headaches the participant/subject experienced with severe severity	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59619	C59619	Headache moderate average monthly frequency	Frequency of the average monthly headaches the participant/subject experienced with moderate severity	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59669	C59669	Headache before traumatic brain injury monthly frequency	Frequency of monthly headaches the participant/subject experienced prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache

Displaying 951 - 975 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.