CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2673-C15971	C15971	Headache warning symptom indicator	Indicator for any auras (warnings) that the headache was going to start	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15971	C15971	Headache warning symptom indicator	Indicator for any auras (warnings) that the headache was going to start	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F3059-C59657	C59657	Headache type family history indicator	Indicator as to whether the participant/subject has a family history of diagnosed headache type	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59657	C59657	Headache type family history indicator	Indicator as to whether the participant/subject has a family history of diagnosed headache type	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2617-C10556	C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental	Pregnancy Information	False	Headache	Headache
F2673-C53077	C53077	Migraine headache light indicator	Indicator as to whether light bothers participant/subject when experiencing a migraine headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C53077	C53077	Migraine headache light indicator	Indicator as to whether light bothers participant/subject when experiencing a migraine headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2632-C15602	C15602	Imaging artifact removal correction indicator	Indicator as to whether any correction for artifact removal was performed	Supplemental	Anatomical Imaging	False	Headache	Headache
F2621-C15996	C15996	Caretaker of child type	Indicates who takes care of the child or adolescent	Supplemental	Social Status	False	Headache	Headache
F2619-C16067	C16067	Newborn complication child indicator	Indicates whether there were other newborn complications experienced by the participant's/subject's child	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16065	C16065	Congenital anomaly child indicator	Indicates whether there were congenital anomalies in the participant's/subject's child	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2620-C15924	C15924	Data point exceed safety parameter indicator	Indicates whether there were any data points that exceeded the safety parameters	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2619-C16062	C16062	Pregnancy fetal diagnostic test performed indicator	Indicates whether there were any abnormal fetal diagnostic tests performed during the pregnancy	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2673-C15893	C15893	Headache retire bed indicator	Indicates whether the participant/subject went to bed with the headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15893	C15893	Headache retire bed indicator	Indicates whether the participant/subject went to bed with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2639-C15985	C15985	Multiple birth indicator	Indicates whether the participant/subject was a part of a multiple live birth	Supplemental	Demographics	False	Headache	Headache
F2619-C16069	C16069	Placenta umbilical cord abnormality indicator	Indicates whether the participant/subject experienced any abnormalities of placenta or umbilical cord	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16055	C16055	Full term delivery child indicator	Indicates whether the participant's/subject's child was delivered full-term	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16037	C16037	Pregnancy most recent live born infant indicator	Indicates whether the outcome of the participant/subject's most recent pregnancy was a live born infant?	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2673-C15962	C15962	Headache affect activity level indicator	Indicates whether the headache changes activity level (i.e., stop playing)	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15962	C15962	Headache affect activity level indicator	Indicates whether the headache changes activity level (i.e., stop playing)	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16040	C16040	Pregnancy fetus normal indicator	Indicates whether the fetus was normal	Exploratory	Pregnancy Outcome	False	Headache	Headache
F3060-C15936	C15936	Headache history indicator	Indicates whether participant/subject suffers from headaches	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2610-C16177	C16177	Post-menopausal indicator	Indicates whether participant is post-menopausal	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache

Displaying 926 - 950 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.