CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3060-C59658	C59658	Relative biological first degree diagnosis headache history indicator	Indicator of whether first-degree biological relatives of the participant/subject has a history of diagnosed headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2614-C59015	C59015	Imaging unsuppress spectrum indicator	Indicator of whether an unsuppressed spectrum was captured	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2611-C15553	C15553	Gene unclassified variant shown indicator	Indicator of whether an unclassified variant shown	Supplemental	DNA Elements	False	Headache	Headache
F2632-C15605	C15605	Imaging registration technique used indicator	Indicator of whether a registration technique used to calculate the transformation to a standard average brain space	Supplemental	Anatomical Imaging	False	Headache	Headache
F1362-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Supplemental	Physical Exam	False	Headache	Headache
F2617-C16026	C16026	Pregnancy prior history loss indicator	Indicator of whether a miscarriage ( 20 weeks) occurred in any previous pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2611-C15522	C15522	Headache gene present indicator	Indicator of whether a gene associated with headache was present after genetic testing	Supplemental	DNA Elements	False	Headache	Headache
F2626-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2629-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Medical and Family History	False	Headache	Headache
F2617-C16024	C16024	Pregnancy prior history birth defect indicator	Indicator of whether a birth defect occurred in any of the participant/subject's previous pregnancies	Supplemental	Pregnancy Information	False	Headache	Headache
F2629-C17989	C17989	Relative second degree total count unknown indicator	Indicator of the unknown total number of second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17986	C17986	Relative first degree total count unknown indicator	Indicator of the unknown total number of first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17990	C17990	Relative second degree live count unknown indicator	Indicator of the unknown number of living second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17987	C17987	Relative first degree live count unknown indicator	Indicator of the unknown number of living first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17991	C17991	Relative second degree decease count unknown indicator	Indicator of the unknown number of deceased second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17988	C17988	Relative first degree decease count unknown indicator	Indicator of the unknown number of deceased first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2490-C00711	C00711	Tobacco prior use indicator	Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months	Supplemental	Behavioral History	False	Headache	Headache
F2490-C00706	C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental	Behavioral History	False	Headache	Headache
F2640-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	Headache	Headache
F2621-C56786	C56786	Education level other caretaker USA type	Indicator of the highest level of education completed by the participant/subject's other caregiver	Supplemental	Social Status	False	Headache	Headache
F2621-C12607	C12607	Education level maternal USA type	Indicator of the highest level of education completed by the participant/subject's mother	Supplemental	Social Status	False	Headache	Headache
F2621-C12609	C12609	Education level paternal USA type	Indicator of the highest level of education completed by the participant/subject's father	Supplemental	Social Status	False	Headache	Headache
F2490-C00713	C00713	Drug or substance current illicit use indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Headache	Headache
F2613-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Concomitant Medications	False	Headache	Headache
F2490-C00710	C00710	Tobacco current use indicator	Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time	Supplemental	Behavioral History	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.