CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2673-C15969	C15969	Headache or migraine medication taken type	Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15969	C15969	Headache or migraine medication taken type	Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16169	C16169	Pregnancy outcome type	Type of outcome of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C11080	C11080	Delivery modality type	Type of modality of the participant/subject's intrauterine orientation at delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2620-C15918	C15918	Quantitative sensory testing test methodology type	Type of methodology used for QST imaging	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2491-C15638	C15638	Imaging multiple comparisons method text	Type of method(s) chosen for correcting for multiple comparisons	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2632-C15638	C15638	Imaging multiple comparisons method text	Type of method(s) chosen for correcting for multiple comparisons	Supplemental	Anatomical Imaging	False	Headache	Headache
F2634-C15638	C15638	Imaging multiple comparisons method text	Type of method(s) chosen for correcting for multiple comparisons	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2640-C01513	C01513	Height measurement method type	Type of method used to measure the participant/subject height	Supplemental	Vital Signs	False	Headache	Headache
F2640-C15904	C15904	Body mass index measurement method type	Type of method used to calculate the participant/subject's body mass index (BMI)	Supplemental	Vital Signs	False	Headache	Headache
F2640-C01546	C01546	Weight measurement method type	Type of method use to measure the participant's/subject's body weight	Supplemental	Vital Signs	False	Headache	Headache
F2629-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Medical and Family History	False	Headache	Headache
F2614-C59012	C59012	Imaging MRS sequence type	Type of magnetic resonance spectroscopy (MRS) sequence used	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2621-C00226	C00226	Health insurance type	Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Headache	Headache
F2619-C16042	C16042	Delivery mode induced reason	Type of induced delivery that occurred during the live infant birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2614-C59017	C59017	Imaging metabolite quantification procedure tool type	Type of imaging quantification tool	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2614-C15559	C15559	Imaging metabolite type	Type of imaging metabolite measured	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2634-C15580	C15580	Imaging acquisition type	Type of imaging acquisition	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2632-C15579	C15579	Imaging diffusion type	Type of image output for the diffusion imaging study	Supplemental	Anatomical Imaging	False	Headache	Headache
F3059-C59668	C59668	Headache symptom change after traumatic brain injury type	Type of headache symptoms experienced by the participant/subject following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2626-C16005	C16005	Headache migraine type	Type of headache or migraine	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F3059-C59655	C59655	Headache category	Type of headache experienced by the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59655	C59655	Headache category	Type of headache experienced by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2625-C56112	C56112	Chronic migraine fulfill further International Classification of Headache Disorders criteria type	Type of further criteria the patient/subject's headaches fulfill, on =8 days per month for >3 months from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2634-C15623	C15623	Imaging nonstimulation fixation landmark indicator	Type of fixation landmark	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.