CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2491-C56659	C56659	General anesthesia time	The time the general anesthesia was given to the patient	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C56043	C56043	Headache migraine onset time	The time that the subject's headache started	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2624-C56043	C56043	Headache migraine onset time	The time that the subject's headache started	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2624-C56044	C56044	Headache migraine end time	The time that the subject's headache ended	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2491-C56633	C56633	Imaging epoch time	The time that the epoch (trial) lasted	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C56151	C56151	Last cigarette smoked before sample collection time	The time since the participant last smoked a cigarette before sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15977	C15977	Headache end date and time	The time of the day the headache ended	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2673-C15977	C15977	Headache end date and time	The time of the day the headache ended	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15977	C15977	Headache end date and time	The time of the day the headache ended	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2673-C15978	C15978	Headache re-start date and time	The time of the day (24 hr clock) that the headache restarted	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15978	C15978	Headache re-start date and time	The time of the day (24 hr clock) that the headache restarted	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2673-C15979	C15979	Headache re-start end date and time	The time of the day (24 hr clock) that the headache ended after headache restarted	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15979	C15979	Headache re-start end date and time	The time of the day (24 hr clock) that the headache ended after headache restarted	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2610-C56134	C56134	Specimen freezing time	The time of specimen freezing	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2673-C15975	C15975	Headache post initial study medication time interval	The time interval after taking initial study medication for headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15975	C15975	Headache post initial study medication time interval	The time interval after taking initial study medication for headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2490-C56031	C56031	Pittsburgh Sleep Quality Index (PSQI) - Get up morning past month time	The time at which the subject got up in the morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Behavioral History	False	Headache	Headache
F2673-C56777	C56777	Headache start date and time	The time at which the participant/subject's headache started	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C56777	C56777	Headache start date and time	The time at which the participant/subject's headache started	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2673-C56783	C56783	Headache re-start medication taken time	The time at which the participant/subject took the pain medication for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C56783	C56783	Headache re-start medication taken time	The time at which the participant/subject took the pain medication for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2492-C56735	C56735	Cortical evoked potential temporal frequency	The temporal frequency of the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2610-C55009	C55009	Specimen storage temperature value	The temperature value for the specimen being stored	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56098	C56098	Sample temperature before centrifugation storage value	The temperature of the biomarker sample before centrifugation or storage	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2615-C15531	C15531	Imaging evoked potential stimulation frequency value	The stimulation frequency used on the participant/subject as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.