CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2612-C15555	C15555	Imaging visual analysis performed indicator	Whether visual analysis was performed while blind to clinical data	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2614-C15555	C15555	Imaging visual analysis performed indicator	Whether visual analysis was performed while blind to clinical data	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2614-C59016	C59016	Imaging metabolite quantification procedure phantom data reference acquire indicator	Whether the phantom data was acquired for reference	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2610-C15632	C15632	Premenarchal indicator	Whether the participant/subject is currently premenarchal, the period before a female's first menstrual cycle	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15629	C15629	Postpartum indicator	Whether the participant/subject is currently in her postpartum phase, after pregnancy phase, of pregnancy	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2621-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Social Status	False	Headache	Headache
F2610-C15618	C15618	Premenopausal indicator	Whether or not the participant/subject is currently in her premenopausal phase	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15607	C15607	Medication history change indicator	Whether or not the participant/subject had a change in his or her medication around the time of specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2632-C15362	C15362	Imaging QA/QC performed indicator	Was image-based QA/QC performed?	Supplemental	Anatomical Imaging	False	Headache	Headache
F2632-C15431	C15431	Imaging white matter volume measurement	Volume of white matter in the brain	Supplemental	Anatomical Imaging	False	Headache	Headache
F2614-C10945	C10945	Imaging voxel volume measurement	Volume of the voxel calculated by multiplying the three size measurements	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Headache	Headache
F2492-C10586	C10586	Imaging bandwidth value	Value, in Hertz per pixel, of bandwidth used in imaging acquisition	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2640-C01554	C01554	Oxygen saturation measurement	Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry	Supplemental	Vital Signs	False	Headache	Headache
F3060-C59617	C59617	Headache less than 30 day ratio value	Value which represents the headache ratio calculation. Value calculated by dividing the response from Q (a) by Q (b) and multiplying by 100. Applies only to patients that have had post traumatic headache for less than 30 days	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59622	C59622	Headache at least 30 days ratio value	Value which represents the headache ratio calculation. Applies only to patients that have had post traumatic headache for at least 30 days	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2634-C56606	C56606	Region coordinate z value	Value representing the region's z coordinate	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2634-C56605	C56605	Region coordinate y value	Value representing the region's y coordinate	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2634-C56604	C56604	Region coordinate x value	Value representing the region's x coordinate	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2629-C56024	C56024	Relative second degree decease death age value	Value representing the age of the subject's second-degree relative at their time of death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56017	C56017	Relative first degree decease death age value	Value representing the age of the subject's first-degree relative at their time of death	Supplemental	Medical and Family History	False	Headache	Headache
F2619-C16051	C16051	Birth weight child value	Value of the weight of the participant/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C55937	C55937	Birth weight mother value	Value of the weight of the participant/subject at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2612-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2614-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.