CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 1122

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2617-C17996	C17996	Pregnancy prior history birth defect text	Text of any comments about any birth defects that occurred during the participant/subject's previous pregnancies	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C10981	C10981	Birth control method type	The participant's method of birth control	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16016	C16016	Prenatal testing date and time	Date the selected prenatal testing type was performed for the current pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16027	C16027	Pregnancy prior history loss week count	Number of the week of pregnancy during which the stillbirth or miscarriage occurred	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C15624	C15624	Pregnancy indicator	Indicates if the participant/subject is currently pregnant	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16017	C16017	Prenatal testing result	Results of the selected prenatal testing type	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16028	C16028	Pregnancy prior history toxic exposure type	Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C19040	C19040	Prenatal testing other text	The free-text field related to 'Prenatal testing type' specifying other text. The type of prenatal testing that was performed for the current pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16008	C16008	Birth control indicator	Indicates if participant uses birth control	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16018	C16018	Pregnancy complication indicator	Indicator of whether the participant/subject had complications during the pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16173	C16173	Pregnancy estimate delivery date and time	The date and time (if applicable) the participant is estimated to deliver the pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C19044	C19044	Pregnancy prior history toxic exposure other text	The free-text field related to 'Pregnancy prior history toxic exposure type' specifying other text. Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16009	C16009	Birth control last used date and time	Date (and time, if applicable and known) birth control was last used	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16020	C16020	Pregnancy infection illness indicator	Indicator of whether there were any infections/illnesses that occurred during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16175	C16175	Menstrual period last date	Date of the participant's last menstrual period	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C55934	C55934	Pregnancy prior history births count	Count of the total number of pregnancies, either full-term or pre-term, that the patient/subject has been through	Supplemental	Pregnancy Information	False	Headache	Headache
F3060-C59615	C59615	Headache day per month frequency	Frequency of headaches the participant/subject experienced within the last 30 days	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59623	C59623	Headache after traumatic brain injury frequency change category	Category which represents headache frequency since participant/subject experienced a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59631	C59631	Headache laterality type	Type of side were headache is located	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59639	C59639	Headache additional symptom laterality type	Laterality type of the participant's/subject's headache symptom	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C15936	C15936	Headache history indicator	Indicates whether participant/subject suffers from headaches	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59647	C59647	Sensitivity to sound without headache frequency category	Category that describes how frequently the headache associated symptom of sensitivity to sound effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59607	C59607	Headache traumatic brain injury previous count	Count of previous traumatic brain injuries not including the current event experienced by the participant/subject that led to the current post traumatic headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59655	C59655	Headache category	Type of headache experienced by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59656	C59656	Headache category other text	The free-text field related to 'Headache category' specifying other text	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.