CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2618-C05122	C05122	Study therapy administered date and time	Date (and time, if applicable and known) the study therapy was administered to the participant/subject	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C56042	C56042	Headache severity scale	The scale of the amount of headache the participant/subject is experiencing	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C16211	C16211	Headache pain medication after study drug indicator	Indicator whether the subject has received any additional pain or headache medications after the study drug was administered	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C56039	C56039	Headache migraine rescue device used name	The name of the rescue device used in the treatment of headache or migraine	Supplemental	Rescue Treatments	False	Headache	Headache
F2620-C19029	C19029	Quantitative sensory testing stimulation other text	The free-text field related to 'Quantitative sensory testing stimulation type' specifying other text. Type of QST stimulation	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C58649	C58649	Quantitative sensory testing decrease stimulation rate unit of measure	The unit of measure for the rate of decrease of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing decrease stimulation rate value"	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C15916	C15916	Statistical method used text	Details specifying the statistical method used to combine data if test was performed more than once	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C15926	C15926	Quantitative sensory testing thermode electrode size value	Size of the thermode/electrode used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C15934	C15934	Temperature skin measurement	The participant/subject's baseline skin temperature	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C19030	C19030	Quantitative sensory testing test methodology other text	The free-text field related to 'Quantitative sensory testing test methodology type' specifying other text. Type of methodology used for QST imaging	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C15918	C15918	Quantitative sensory testing test methodology type	Type of methodology used for QST imaging	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C15927	C15927	Quantitative sensory testing increase stimulation rate value	Rate of increase of stimulation used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C15935	C15935	Exam room temperature measurement	The exam room temperature at the time of testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C55774	C55774	Imaging headache relation time type	The type of timing of the imaging in relation to headache	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C15920	C15920	Quantitative sensory testing test equipment text	Description of equipment used for testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2620-C15928	C15928	Quantitative sensory testing decrease stimulation rate value	Rate of decrease of stimulation used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache

Displaying 101 - 125 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.