CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C56146	C56146	Assay result other text	The free-text field describing another result from the assay	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56126	C56126	Centrifugation substance added before after text	Text specifying the substance(s) added before or after centrifugation	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56056	C56056	Sample collection headache diagnosis text	Text describing the headache diagnosis at the time of sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56140	C56140	Assay sensitivity specificity value	The value of the assay sensitivity and specificity	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56072	C56072	Cigarette smoked past week unit of measure	The unit of measure pertaining to the amount of cigarettes the participant has smoked in the past week	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56087	C56087	Recreational substance dose	The dose of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C01701	C01701	Lab specimen collection date and time	Date (and time if applicable and known) when the specimen was collected	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56100	C56100	CSF time storage analysis interval	The interval of time between CSF storage and analysis	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15627	C15627	Pregnancy gestational week value	Participant/subject's current number of gestational day(s) or week(s)	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56113	C56113	CSF specimen white blood cell count	The number of white blood cells (WBCs) counted in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C54754	C54754	Specimen collection tube other text	The free-text field related to other tube for specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56147	C56147	Headache free after specimen collection verified duration	The duration of time which the participant was verified to be headache-free after specimen collection	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55004	C55004	Specimen centrifugation temperature value	The value related to temperature in a centrifuge	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56127	C56127	Other processing method performed indicator	The indicator relating to whether any other processing methods were performed	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56057	C56057	Headache ictal indicator	The indicator relating to whether the headache was ictal	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56075	C56075	Alcoholic drink consume past week count	The number of alcoholic drinks that were consumed within the past week	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56088	C56088	Recreational substance quantity value	The value representing the quantity of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C10821	C10821	Food last consumed date and time	Date (and time, if applicable and known) the participant/subject last ate food	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56101	C56101	Blood time storage analysis interval	The interval of time between blood storage and analysis	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15629	C15629	Postpartum indicator	Whether the participant/subject is currently in her postpartum phase, after pregnancy phase, of pregnancy	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56114	C56114	CSF specimen red blood cell count	The number of red blood cells (RBCs) counted in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56148	C56148	Headache type text	Text specifying the type of headache the participant/subject had, has, or is having	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55005	C55005	Specimen centrifugation duration	The duration related to centrifugation	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56128	C56128	Other processing method performed text	Text specifying any other processing methods that were performed	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56059	C56059	Headache 28 day prior sample collection rate	The rate of the participant's headaches during the 28 days prior to sample collection	Core	Biospecimens Collection and Processing	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.