CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3060-C59607	C59607	Headache traumatic brain injury previous count	Count of previous traumatic brain injuries not including the current event experienced by the participant/subject that led to the current post traumatic headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59655	C59655	Headache category	Type of headache experienced by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59615	C59615	Headache day per month frequency	Frequency of headaches the participant/subject experienced within the last 30 days	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59623	C59623	Headache after traumatic brain injury frequency change category	Category which represents headache frequency since participant/subject experienced a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59681	C59681	Dizziness vertigo without headache indicator	Indicator of whether participant/subject experienced dizziness and/or vertigo without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59675	C59675	Headache before traumatic brain injury noncontinuous inadequate treatment duration	Duration of participant/subject's inadequately treated noncontinuous headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59631	C59631	Headache laterality type	Type of side were headache is located	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59640	C59640	Headache additional symptom unilateral same side present indicator	Indicator of whether the participant's/subject's symptom is present on the same side to the headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59659	C59659	Headache before traumatic brain injury history indicator	Indicator of whether the participant/subject had experienced headaches prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59667	C59667	Headache after traumatic brain injury symptom change indicator	Indicator of whether the participant's/subject's headaches symptoms changed following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59682	C59682	Gait posture imbalance without headache indicator	Indicator of whether participant/subject experienced gait and/or postural imbalance without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59676	C59676	Nausea without headache indicator	Indicator of whether participant/subject experienced nausea without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59632	C59632	Headache maximum pain intensity scale	Rating scale of the maximum headache pain intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59641	C59641	Headache aura occurrence indicator	Indicator of whether the participant/subject has an aura occur with headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59660	C59660	Headache prior diagnosis indicator	Indicator of whether the participant/subject had a prior headache diagnosis	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59668	C59668	Headache symptom change after traumatic brain injury type	Type of headache symptoms experienced by the participant/subject following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59683	C59683	Memory concentration difficult without headache indicator	Indicator of whether participant/subject experienced difficulty with memory/concentration without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59677	C59677	Vomit without headache indicator	Indicator of whether participant/subject experienced vomiting without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59634	C59634	Headache worse with neck movement indicator	Indicator of whether the subject's/participant's headaches worsen with neck movements	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59642	C59642	Headache aura symptom type frequency category	Category that describes how the aura symptom type effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59661	C59661	Headache prior diagnosis type	Type of prior headache history diagnosis	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59669	C59669	Headache before traumatic brain injury monthly frequency	Frequency of monthly headaches the participant/subject experienced prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.