CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1122
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56071 Cigarette smoked past week count

The number of cigarettes the participant has smoked in the past week

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56086 Recreational substance name

The name of the recreational substance the participant uses

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56098 Sample temperature before centrifugation storage value

The temperature of the biomarker sample before centrifugation or storage

 Supplemental Biospecimens Collection and Processing False Headache Headache
C15624 Pregnancy indicator

Indicates if the participant/subject is currently pregnant

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56111 Specimen centrifugation speed value

The speed at which the specimen was centrifuged

 Supplemental Biospecimens Collection and Processing False Headache Headache
C54753 Specimen collection tube type

Type of tube used for specimen collection

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56144 Inter assay variability value

The value representing inter assay variability

 Exploratory Biospecimens Collection and Processing False Headache Headache
C56126 Centrifugation substance added before after text

Text specifying the substance(s) added before or after centrifugation

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56056 Sample collection headache diagnosis text

Text describing the headache diagnosis at the time of sample collection

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56140 Assay sensitivity specificity value

The value of the assay sensitivity and specificity

 Exploratory Biospecimens Collection and Processing False Headache Headache
C56072 Cigarette smoked past week unit of measure

The unit of measure pertaining to the amount of cigarettes the participant has smoked in the past week

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56087 Recreational substance dose

The dose of the recreational substance the participant uses

 Supplemental Biospecimens Collection and Processing False Headache Headache
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56100 CSF time storage analysis interval

The interval of time between CSF storage and analysis

 Supplemental Biospecimens Collection and Processing False Headache Headache
C15627 Pregnancy gestational week value

Participant/subject's current number of gestational day(s) or week(s)

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56113 CSF specimen white blood cell count

The number of white blood cells (WBCs) counted in the participant's CSF specimen

 Supplemental Biospecimens Collection and Processing False Headache Headache
C54754 Specimen collection tube other text

The free-text field related to other tube for specimen collection

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56145 Assay result type

The results obtained from the assay

 Exploratory Biospecimens Collection and Processing False Headache Headache
C56127 Other processing method performed indicator

The indicator relating to whether any other processing methods were performed

 Supplemental-Highly Recommended Biospecimens Collection and Processing False Headache Headache
C56057 Headache ictal indicator

The indicator relating to whether the headache was ictal

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56075 Alcoholic drink consume past week count

The number of alcoholic drinks that were consumed within the past week

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56088 Recreational substance quantity value

The value representing the quantity of the recreational substance the participant uses

 Supplemental Biospecimens Collection and Processing False Headache Headache
C10821 Food last consumed date and time

Date (and time, if applicable and known) the participant/subject last ate food

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56101 Blood time storage analysis interval

The interval of time between blood storage and analysis

 Supplemental Biospecimens Collection and Processing False Headache Headache
C15629 Postpartum indicator

Whether the participant/subject is currently in her postpartum phase, after pregnancy phase, of pregnancy

 Supplemental Biospecimens Collection and Processing False Headache Headache
Displaying 151 - 175 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.