CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C55004	C55004	Specimen centrifugation temperature value	The value related to temperature in a centrifuge	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56127	C56127	Other processing method performed indicator	The indicator relating to whether any other processing methods were performed	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56057	C56057	Headache ictal indicator	The indicator relating to whether the headache was ictal	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56075	C56075	Alcoholic drink consume past week count	The number of alcoholic drinks that were consumed within the past week	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56148	C56148	Headache type text	Text specifying the type of headache the participant/subject had, has, or is having	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56091	C56091	Postmenopausal last menstruation date	The date of the participant's last menstruation if she is postmenopausal	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C12779	C12779	Test assay perform date	Date the confirmatory diagnostic test or assay was performed	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56102	C56102	Biomarker specimen type	The type of specimen or specimens collected from the participant/subject for biomarkers	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15630	C15630	Postpartum day week value	Number of days/weeks the participant/subject has been postpartum	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56117	C56117	CSF specimen total protein value	The value representing the total protein found in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55005	C55005	Specimen centrifugation duration	The duration related to centrifugation	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56128	C56128	Other processing method performed text	Text specifying any other processing methods that were performed	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56059	C56059	Headache 28 day prior sample collection rate	The rate of the participant's headaches during the 28 days prior to sample collection	Core	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56077	C56077	Prescription medication dose	The dose of the participant's prescription medication	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56149	C56149	Headache treatment type	The type of treatment for the participant's headache	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56141	C56141	Assay upper detection limit value	The value of the upper limit of detection of the assay	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56093	C56093	Specimen collected for biomarker indicator	The indicator relating to whether the participant had any specimen(s) collected for biomarkers	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15604	C15604	Headache severity prior sample collection score	The score rating of the severity of the participant/subject's last headache prior to sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56106	C56106	Specimen blood collection type	The type of blood component that was collected	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15632	C15632	Premenarchal indicator	Whether the participant/subject is currently premenarchal, the period before a female's first menstrual cycle	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56118	C56118	CSF specimen test for hemoglobin contaminant method text	Text describing the method of testing for hemoglobin contaminants in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55009	C55009	Specimen storage temperature value	The temperature value for the specimen being stored	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56129	C56129	Specimen frozen indicator	The indicator relating to whether the specimen was frozen	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56060	C56060	Timeframe window between medication change specimen collection duration	The timeframe window between medication changes and specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56079	C56079	Prescription medication quantity value	The value representing the quantity of the participant's prescription medication	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.