CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C15607	C15607	Medication history change indicator	Whether or not the participant/subject had a change in his or her medication around the time of specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56107	C56107	Biomarker specimen other text	The free-text field describing another type of specimen that was collected from the participant/subject	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15977	C15977	Headache end date and time	The time of the day the headache ended	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56120	C56120	CSF Specimen collection tube type	The type related to tube for CSF specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55357	C55357	Microdialysis cerebral analyte glucose measurement	The value of glucose in in the cerebral microdialysis analyte	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56143	C56143	Intra assay variability value	The value representing intra assay variability	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56151	C56151	Last cigarette smoked before sample collection time	The time since the participant last smoked a cigarette before sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55382	C55382	Medication prescription type text	The free-text field related to type of prescription medication participant/subject	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56131	C56131	Frozen aliquot volume value	The value representing the volume of the frozen aliquot of the sample	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56064	C56064	Medication adjustment 5 half life text	Text describing any medications that have been adjusted or taken within 5 half lives of the biomarkers being assessed	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56081	C56081	Over the counter medication supplement dose	The dose of the participant's over-the-counter medication and/or supplements	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56096	C56096	Drink fluid last date and time	The date and time the participant last drank fluids	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15618	C15618	Premenopausal indicator	Whether or not the participant/subject is currently in her premenopausal phase	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56108	C56108	CSF specimen opening pressure value	The value of the opening pressure of the CSF specimen collected	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56121	C56121	CSF specimen collection tube other text	The free-text field related to other tube for CSF specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56144	C56144	Inter assay variability value	The value representing inter assay variability	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56043	C56043	Headache migraine onset time	The time that the subject's headache started	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56133	C56133	Frozen aliquot volume unit of measure	The unit the frozen aliquot volume was measured in	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56067	C56067	Participant current smoker indicator	The indicator relating to whether the participant is a current smoker	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56082	C56082	Over the counter medication supplement quantity value	The value representing the quantity of the participant's over-the-counter medication and/or supplements	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56097	C56097	Blood time collection storage interval	The interval between the time blood was collected and stored	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15621	C15621	Menstrual cycle day collection time value	Specify day of cycle (e.g. first day of menses is day 0) at time of sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56109	C56109	CSF specimen amount taken value	The value of the amount of CSF that was collected from the participant/subject	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C16177	C16177	Post-menopausal indicator	Indicates whether participant is post-menopausal	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.