CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2617-C16013	C16013	Pregnancy estimated delivery date ultrasound based indicator	Indicator of whether the estimated delivery date is based on an ultrasound examination	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16023	C16023	Pregnancy prior history births pre-term count	Count of the total number of pregnancies the participant/subject carried for less than a full term (	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C17995	C17995	Pregnancy infection illness text	Text specifying any infections or illnesses the participant/subject experienced during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16014	C16014	Pregnancy prenatal testing performed indicator	Indicator of whether prenatal testing was performed for the current pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16024	C16024	Pregnancy prior history birth defect indicator	Indicator of whether a birth defect occurred in any of the participant/subject's previous pregnancies	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C17996	C17996	Pregnancy prior history birth defect text	Text of any comments about any birth defects that occurred during the participant/subject's previous pregnancies	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C10556	C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16015	C16015	Prenatal testing type	The type of prenatal testing that was performed for the current pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16026	C16026	Pregnancy prior history loss indicator	Indicator of whether a miscarriage ( 20 weeks) occurred in any previous pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2619-C16062	C16062	Pregnancy fetal diagnostic test performed indicator	Indicates whether there were any abnormal fetal diagnostic tests performed during the pregnancy	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C17998	C17998	Pregnancy labor delivery complication specification text	Text about the participant/subject's experience with any complications during labor/delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C55937	C55937	Birth weight mother value	Value of the weight of the participant/subject at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C11081	C11081	Delivery caesarean timing status	Status of the caesarean delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16050	C16050	Phenotypic sex child type	Sex of the participant/subject's child based on physical examination	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16063	C16063	Pregnancy fetal diagnostic test date	Date the fetal diagnostic testing was performed during the pregnancy	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C17999	C17999	Tocolytic agents required during preterm specification text	Text specifying the tocolytic agents the participant/subject required during preterm labor	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16037	C16037	Pregnancy most recent live born infant indicator	Indicates whether the outcome of the participant/subject's most recent pregnancy was a live born infant?	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16051	C16051	Birth weight child value	Value of the weight of the participant/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16064	C16064	Pregnancy fetal diagnostic test result	Results of the fetal diagnostic testing performed during the pregnancy	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C18000	C18000	Congenital anomalies child specification text	Text specifying any congenital anomalies of the participant/subject	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16040	C16040	Pregnancy fetus normal indicator	Indicates whether the fetus was normal	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16053	C16053	Birth length child value	Value of the length of the participant's/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16055	C16055	Full term delivery child indicator	Indicates whether the participant's/subject's child was delivered full-term	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16065	C16065	Congenital anomaly child indicator	Indicates whether there were congenital anomalies in the participant's/subject's child	Exploratory	Pregnancy Outcome	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.