CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 876 - 900 of 1122
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59612 Headache traumatic brain injury onset delay duration category

Category which represents how long after the participant's/subject's traumatic brain injury that their headaches began

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59620 Headache severe average monthly frequency

Frequency of the average monthly headaches the participant/subject experienced with severe severity

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59628 Headache days per month count

Count of the number of days the participant/subject experienced headaches in a month

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59636 Headache associated symptom type frequency category

Category that describes how frequently the headache associated symptom type effects the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C05400 Injury date time

Date (and time, if applicable and known) of injury

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59644 Nausea without headache frequency category

Category that describes how frequently the headache associated symptom of nausea effects the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C16207 Family history medical condition first-degree relative type

Relationship of the first-degree family member or ancestor with the medical condition or health related event to the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59653 Headache post traumatic phenotype type

Type describing phenotype of post traumatic headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59613 Headache after traumatic brain injury worsen delay duration category

Category which represents when the participant's/subject's headaches began to worsen after a traumatic brain injury

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59621 Headache post traumatic complete freedom monthly frequency day count

Count of monthly frequency of headaches the participant/subject experienced completely free from headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59629 Headache inadequate treatment duration

Duration of participant's/subject's inadequately treated headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59637 Headache additional symptom type

Type of additional symptoms the participant/subject experienced with headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C15897 Headache associated symptom type

The associated symptoms the participant/subject experienced with headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59645 Vomiting without headache frequency category

Category that describes how frequently the headache associated symptom of vomiting affects the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C16208 Family history medical condition second-degree relative type

Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59654 Headache post traumatic phenotype type other text

The free-text field related to 'Headache post traumatic phenotype type' specifying other text

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59614 Headache continuous indicator

Indicator of whether the participant's/subject's headaches have been continuous

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59622 Headache at least 30 days ratio value

Value which represents the headache ratio calculation. Applies only to patients that have had post traumatic headache for at least 30 days

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59630 Headache laterality anatomic site

Anatomic site location of the headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59638 Headache additional symptom type present indicator

Indicator of whether the participant's/subject's headache symptom is present

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59646 Sensitivity to light without headache frequency category

Category that describes how frequently the headache associated symptom of sensitivity to light effects the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C19035 Headache aura symptom other text

The free-text field related to 'Headache aura symptom type' specifying other text. Type of aura (warning) that a headache was going to start

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59655 Headache category

Type of headache experienced by the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59615 Headache day per month frequency

Frequency of headaches the participant/subject experienced within the last 30 days

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
Displaying 876 - 900 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.