CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2490-C00711	C00711	Tobacco prior use indicator	Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months	Supplemental	Behavioral History	False	Headache	Headache
F2490-C55953	C55953	Tobacco use stopped age not applicable status	Status indicating that age stopped tobacco use does not apply to the subject/participant as they are still using tobacco	Supplemental	Behavioral History	False	Headache	Headache
F2490-C56010	C56010	Perceived Stress Scale (PSS) - Thing going your way scale	Scale of how often in the last month that the participant/subject has felt that things were going his or her way	Supplemental	Behavioral History	False	Headache	Headache
F2490-C00703	C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Headache	Headache
F2490-C00713	C00713	Drug or substance current illicit use indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Headache	Headache
F2490-C55959	C55959	Tobacco packs smoked daily average value	Average number of packs of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	Headache	Headache
F2490-C56011	C56011	Perceived Stress Scale (PSS) - Difficulty piling up unable overcome scale	Scale of how often in the last month that the participant/subject has felt that difficulties were piling up so high that he or she could not overcome them	Supplemental	Behavioral History	False	Headache	Headache
F2490-C56029	C56029	Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month length value	The value of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Behavioral History	False	Headache	Headache
F2490-C00704	C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Headache	Headache
F2490-C00714	C00714	Behavioral history assessment date and time	Date (and time, if applicable and known) the participant/subject behavioral history was taken	Supplemental	Behavioral History	False	Headache	Headache
F2490-C55966	C55966	Alcohol use stopped age not applicable status	Status indicating that age quit drinking does not apply to the subject/participant, as they are still ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Headache	Headache
F2490-C56031	C56031	Pittsburgh Sleep Quality Index (PSQI) - Get up morning past month time	The time at which the subject got up in the morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Behavioral History	False	Headache	Headache
F2490-C00705	C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental	Behavioral History	False	Headache	Headache
F2490-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental	Behavioral History	False	Headache	Headache
F2490-C55977	C55977	Overall diet health scale	A general scale of how healthy the participant/subject's diet is	Supplemental	Behavioral History	False	Headache	Headache
F2490-C56034	C56034	Pittsburgh Sleep Quality Index (PSQI) - Asleep past month hour duration	The duration of time (in hours) the subject was asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Behavioral History	False	Headache	Headache
F2490-C00706	C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental	Behavioral History	False	Headache	Headache
F2490-C06108	C06108	Tobacco smoke pack-year value	If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]	Supplemental	Behavioral History	False	Headache	Headache
F2490-C55989	C55989	Regular aerobic exercise indicator	Indicator related to whether or not the participant/subject participates in regular aerobic exercise	Supplemental	Behavioral History	False	Headache	Headache
F2610-C56120	C56120	CSF Specimen collection tube type	The type related to tube for CSF specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55357	C55357	Microdialysis cerebral analyte glucose measurement	The value of glucose in in the cerebral microdialysis analyte	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56130	C56130	Original specimen repeated refrozen rethawed indicator	The indicator relating to whether the original specimen has been repeatedly re-frozen or re-thawed	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56063	C56063	Blood sample last acute abortive time	The time the last acute abortive was taken in relationship to the blood sample	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56080	C56080	Over the counter medication supplement name	The name of the participant's over-the-counter medication and/or supplements	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56095	C56095	CSF time collection storage interval	The interval between the time CSF was collected and stored	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.