CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1001 - 1025 of 1122

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3059-C59637	C59637	Headache additional symptom type	Type of additional symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C55775	C55775	Imaging ictal pain intensity value	The value related to the intensity of the subject's pain if the timing is ictal	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2610-C15627	C15627	Pregnancy gestational week value	Participant/subject's current number of gestational day(s) or week(s)	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2629-C15998	C15998	Relative first degree live count	The total number of the participant/subject first-degree living relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2634-C10838	C10838	Imaging voxel size axis 1 measurement	Measurement, in millimeters, of the axis 1 dimension of the voxel within the anatomy of interest	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2617-C19044	C19044	Pregnancy prior history toxic exposure other text	The free-text field related to 'Pregnancy prior history toxic exposure type' specifying other text. Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2490-C56034	C56034	Pittsburgh Sleep Quality Index (PSQI) - Asleep past month hour duration	The duration of time (in hours) the subject was asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Behavioral History	False	Headache	Headache
F2610-C56113	C56113	CSF specimen white blood cell count	The number of white blood cells (WBCs) counted in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F3059-C59656	C59656	Headache category other text	The free-text field related to 'Headache category' specifying other text	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C56600	C56600	Imaging functional scan performed task count	The total number of performed tasks during the patient's functional scan	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2610-C54754	C54754	Specimen collection tube other text	The free-text field related to other tube for specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2629-C16021	C16021	Family history second-degree relative affected count	The number of second-degree relatives affected with the medical condition	Supplemental	Medical and Family History	False	Headache	Headache
F2634-C15588	C15588	Imaging stimulation device make text	Make of device make used for stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2625-C56068	C56068	Migraine without aura meet International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject's condition meets the criteria of being a migraine without aura based on International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2618-C05122	C05122	Study therapy administered date and time	Date (and time, if applicable and known) the study therapy was administered to the participant/subject	Supplemental	Rescue Treatments	False	Headache	Headache
F2491-C15640	C15640	Imaging corrective analysis P-values number	P-values used for any corrective analysis	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C56126	C56126	Centrifugation substance added before after text	Text specifying the substance(s) added before or after centrifugation	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F3059-C59664	C59664	Headache after traumatic brain injury change indicator	Indicator of whether the participant's/subject's headaches after a traumatic brain injury changed followingf the TBI	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C56608	C56608	Imaging evoked functional scan stimulation type	The type of stimulation used for the patient's evoked functional scan, if applicable	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2610-C56056	C56056	Sample collection headache diagnosis text	Text describing the headache diagnosis at the time of sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2629-C17990	C17990	Relative second degree live count unknown indicator	Indicator of the unknown number of living second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2620-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15611	C15611	Imaging standard average brain text	Text representing the standard average brain used	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2625-C56112	C56112	Chronic migraine fulfill further International Classification of Headache Disorders criteria type	Type of further criteria the patient/subject's headaches fulfill, on =8 days per month for >3 months from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2618-C56042	C56042	Headache severity scale	The scale of the amount of headache the participant/subject is experiencing	Supplemental	Rescue Treatments	False	Headache	Headache

Displaying 1001 - 1025 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.