CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 1122

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C56093	C56093	Specimen collected for biomarker indicator	The indicator relating to whether the participant had any specimen(s) collected for biomarkers	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2673-C56783	C56783	Headache re-start medication taken time	The time at which the participant/subject took the pain medication for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2032-C07431	C07431	Patient Health Questionnaire (PHQ) - Depressed score	Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2684-C15969	C15969	Headache or migraine medication taken type	Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2032-C07440	C07440	Patient Health Questionnaire - (PHQ) - Depression questionnaire total score	Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2684-C15980	C15980	Headache affected activity type	Types of school or other activities affected by the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C56780	C56780	Headache reduce activity level indicator	The indicator relating to whether the participant/subject's headache reduced his/her activity level	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2685-C13207	C13207	Generalized Anxiety Disorder (GAD-7) - worry too much scale	Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Headache	Headache
F2634-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F3060-C59633	C59633	Headache current pain scale	Scale for the current pain of this headache on a scale of 0-10	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2622-C55776	C55776	Imaging ictal headache since onset duration	The duration of time since the onset of the subject's headache if it was ictal	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2617-C16024	C16024	Pregnancy prior history birth defect indicator	Indicator of whether a birth defect occurred in any of the participant/subject's previous pregnancies	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15594	C15594	Imaging distortions quality method name	Description of image quality image distortion monitoring method used	Supplemental	Anatomical Imaging	False	Headache	Headache
F3059-C59682	C59682	Gait posture imbalance without headache indicator	Indicator of whether participant/subject experienced gait and/or postural imbalance without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2610-C56120	C56120	CSF Specimen collection tube type	The type related to tube for CSF specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2621-C15989	C15989	Unemployed reason	Participant's/subject's reason for unemployment	Supplemental	Social Status	False	Headache	Headache
F2639-C08088	C08088	Age value unit of measure	Unit of measure used to initially record the age value	Supplemental	Demographics	False	Headache	Headache
F2615-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2491-C56683	C56683	Imaging magnetoencephalography power line filter type	The type of power-line filter used or magnetoencephalography (MEG)	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C55357	C55357	Microdialysis cerebral analyte glucose measurement	The value of glucose in in the cerebral microdialysis analyte	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56643	C56643	Imaging anticipated acquisition time	The anticipated acquisition time for the imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3060-C59641	C59641	Headache aura occurrence indicator	Indicator of whether the participant/subject has an aura occur with headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2617-C17995	C17995	Pregnancy infection illness text	Text specifying any infections or illnesses the participant/subject experienced during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15636	C15636	Imaging comparison P-values number	P-values used for comparisons between cohorts or the group averages	Supplemental	Anatomical Imaging	False	Headache	Headache

Displaying 101 - 125 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.