CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2624-C10626	C10626	Condition diary date and time	Date (and time, if applicable and known) the diary data are recorded	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2673-C15939	C15939	Headache typical level activities affected result	Result of onset of headache in usually daily activities	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C56779	C56779	Headache sound aggravate indicator	The indicator relating to whether sound aggravates the participant/subject or makes his/her headache worse	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2685-C13206	C13206	Generalized Anxiety Disorder (GAD-7) - not stop worry scale	Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Headache	Headache
F2032-C07430	C07430	Patient Health Questionnaire (PHQ) - Little interest score	Score of how much the subject has been bothered by having little interest or pleasure in doing things in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2684-C15967	C15967	Diary day migraine indicator	Indicator of whether the participant/subject thought the headache was a migraine	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2032-C07439	C07439	Patient Health Questionnaire (PHQ) - Better dead thought score	Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2684-C15979	C15979	Headache re-start end date and time	The time of the day (24 hr clock) that the headache ended after headache restarted	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2621-C56786	C56786	Education level other caretaker USA type	Indicator of the highest level of education completed by the participant/subject's other caregiver	Supplemental	Social Status	False	Headache	Headache
F2640-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	Vital Signs	False	Headache	Headache
F2615-C55776	C55776	Imaging ictal headache since onset duration	The duration of time since the onset of the subject's headache if it was ictal	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2632-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Anatomical Imaging	False	Headache	Headache
F2491-C56698	C56698	Imaging magnetoencephalography time frequency analysis method other text	Text describing another method of time-frequency analysis of the magnetoencephalography (MEG) recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C56079	C56079	Prescription medication quantity value	The value representing the quantity of the participant's prescription medication	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2620-C55777	C55777	Imaging inter peri ictal headache since end duration	The duration of time since the end of the subject's last inter-ictal or peri-ictal headahe	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2614-C15555	C15555	Imaging visual analysis performed indicator	Whether visual analysis was performed while blind to clinical data	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2491-C56658	C56658	General anesthesia text	Text describing the drug(s) and dosage of any general anesthesia used on the patient	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C56770	C56770	Cortical evoked potential steady-state time frequency analysis indicator	The indicator relating to whether time-frequency analyses were performed for steady-state evoked potentials	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2491-C56618	C56618	Imaging magnetoencephalography coil configuration other text	Text describing another type of coil configuration used for the MEG imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3060-C59656	C59656	Headache category other text	The free-text field related to 'Headache category' specifying other text	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2632-C19074	C19074	Imaging analysis diffusion measurement other text	The free-text field related to 'Imaging analysis diffusion measurement type' specifying other text. Type of analysis approach for diffusion tensor imaging (DTI) measurement	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C59616	C59616	Headache day since onset count	Count of days passed since participant's/subject's onset of post traumatic headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2622-C15552	C15552	Imaging stimuli duration	Duration of stimuli used on imaging test	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2640-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.