CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2673-C15893	C15893	Headache retire bed indicator	Indicates whether the participant/subject went to bed with the headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15962	C15962	Headache affect activity level indicator	Indicates whether the headache changes activity level (i.e., stop playing)	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2610-C56131	C56131	Frozen aliquot volume value	The value representing the volume of the frozen aliquot of the sample	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2684-C19032	C19032	Headache typical pain other text	The free-text field related to 'Headache typical pain type' specifying other text. Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C56782	C56782	Headache re-start medication taken type	Type of pain medication(s) taken by participant/subject for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2685-C13209	C13209	Generalized Anxiety Disorder (GAD-7) - restless scale	Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Headache	Headache
F2032-C07433	C07433	Patient Health Questionnaire (PHQ) - Tired little energy score	Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2684-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2624-C15967	C15967	Diary day migraine indicator	Indicator of whether the participant/subject thought the headache was a migraine	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2614-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2491-C56653	C56653	Imaging somatosensory device status	The status of any somatosensory (electrical/mechanical stimulus) devices during data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3060-C59651	C59651	Memory concentration difficult without symptom frequency category	Category that describes how frequently the headache associated symptom memory/concentration effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2632-C18706	C18706	Imaging post reconstruction filter other text	The free-text field related to 'Imaging post reconstruction filter type' specifying other text. Type of post reconstruction filter used to smooth image data	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C59611	C59611	Headache post traumatic start date	Date (and time, if applicable and known) for the start of participant's/subject's post traumatic headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2622-C15524	C15524	Imaging transcranial magnetic stimulation technique type	The type of TMS Imaging technique used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2640-C01535	C01535	Respiratory rate	Rate of the participant's breathing (inhalation and exhalation)	Supplemental	Vital Signs	False	Headache	Headache
F2615-C55783	C55783	Imaging evoked potential (EV) laser nociceptive stimulation manufacturer name	The name of the laser nociceptive stimulation manufacturer used as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2632-C08238	C08238	Imaging repetition gap duration	Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition	Supplemental	Anatomical Imaging	False	Headache	Headache
F2610-C56082	C56082	Over the counter medication supplement quantity value	The value representing the quantity of the participant's over-the-counter medication and/or supplements	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2620-C58649	C58649	Quantitative sensory testing decrease stimulation rate unit of measure	The unit of measure for the rate of decrease of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing decrease stimulation rate value"	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2614-C15577	C15577	Imaging metabolite quantification procedure name	Name of the metabolite quantification procedure	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2491-C56661	C56661	Imaging magnetoencephalography blood pressure monitor indicator	The indictor relating to whether a blood pressure monitor was used during data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C56773	C56773	Cortical evoked potential latency measured indicator	The indicator relating to whether any latencies for transient evoked potentials were measured	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2491-C56621	C56621	Imaging magnetoencephalography head localization during recording type	The type of head localization for measuring head movement during the MEG recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2632-C55789	C55789	Imaging morphometry analysis approach type	Type approach used for brain morphometry analysis	Supplemental	Anatomical Imaging	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.