CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1122
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10626 Condition diary date and time

Date (and time, if applicable and known) the diary data are recorded

Supplemental-Highly Recommended Headache Calendar Headache Headache
C15939 Headache typical level activities affected result

Result of onset of headache in usually daily activities

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15972 Headache aura symptom type

Type of aura (warning) that a headache was going to start

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C19032 Headache typical pain other text

The free-text field related to 'Headache typical pain type' specifying other text. Type of pain the participant/subject experiences with the headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56782 Headache re-start medication taken type

Type of pain medication(s) taken by participant/subject for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56102 Biomarker specimen type

The type of specimen or specimens collected from the participant/subject for biomarkers

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15967 Diary day migraine indicator

Indicator of whether the participant/subject thought the headache was a migraine

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C07439 Patient Health Questionnaire (PHQ) - Better dead thought score

Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C15979 Headache re-start end date and time

The time of the day (24 hr clock) that the headache ended after headache restarted

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56779 Headache sound aggravate indicator

The indicator relating to whether sound aggravates the participant/subject or makes his/her headache worse

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C13206 Generalized Anxiety Disorder (GAD-7) - not stop worry scale

Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
C07430 Patient Health Questionnaire (PHQ) - Little interest score

Score of how much the subject has been bothered by having little interest or pleasure in doing things in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15950 Headache typical pain type

Type of pain the participant/subject experiences with the headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56129 Specimen frozen indicator

The indicator relating to whether the specimen was frozen

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15975 Headache post initial study medication time interval

The time interval after taking initial study medication for headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C19034 Headache or migraine medication taken other text

The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56093 Specimen collected for biomarker indicator

The indicator relating to whether the participant had any specimen(s) collected for biomarkers

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C56783 Headache re-start medication taken time

The time at which the participant/subject took the pain medication for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15937 Headache typical severity type

Level of headache intensity described by the participant/subject

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15969 Headache or migraine medication taken type

Type of pain medication(s) taken by participant/subject

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C07440 Patient Health Questionnaire - (PHQ) - Depression questionnaire total score

Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C15980 Headache affected activity type

Types of school or other activities affected by the headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56780 Headache reduce activity level indicator

The indicator relating to whether the participant/subject's headache reduced his/her activity level

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
Displaying 76 - 100 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.