CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2620-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15609	C15609	Imaging rest duration	The rest duration between multiple evoked functional acquisitions	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2491-C56648	C56648	Imaging audio monitor during data acquisition status	The status of audio monitoring during data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2612-C55774	C55774	Imaging headache relation time type	The type of timing of the imaging in relation to headache	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2625-C56110	C56110	Chronic migraine five attack fulfill International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject has had 5 attacks fulfilling criteria B-D for 1.1 Migraine without aura and/or criteria B and C for 1.2 Migraine with aura from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2618-C56041	C56041	Headache migraine rescue device used end date	The end date on which the rescue device was used in the treatment of headache or migraine	Supplemental	Rescue Treatments	False	Headache	Headache
F2611-C10846	C10846	Gene variant or mutation indicator	Indicator whether a variant or mutation was found in the common gene screened in the participant/subject for the disease or disorder	Supplemental	DNA Elements	False	Headache	Headache
F3059-C59671	C59671	Headache moderate before traumatic brain injury average monthly frequency	Average monthly frequency of headaches the participant/subject experienced with moderate severity prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2491-C56696	C56696	Imaging magnetoencephalography integration structural imaging source other text	Text describing another structural imaging source used for integration of MEG and other anatomical imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2629-C56019	C56019	Sibling live count	The total number of alive siblings that the subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2620-C15918	C15918	Quantitative sensory testing test methodology type	Type of methodology used for QST imaging	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15639	C15639	Imaging coordinate of significant cluster text	Text representing the coordinate of significant clusters	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2491-C56656	C56656	Imaging magnetoencephalography magnetic shielded room person count	The number of persons accompanying the examiner in the magnetic shielding room, if applicable	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2612-C55782	C55782	Imaging scanner software hardware update text	Text describing any scanner software or hardware updates during the time the study was performed	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2626-C16019	C16019	Family history relative first-degree affect count	The number of first-degree relatives affected with the medical condition	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2611-C15557	C15557	Gene detection method type	The method used to detect the gene mutation or variant	Supplemental	DNA Elements	False	Headache	Headache
F2617-C16018	C16018	Pregnancy complication indicator	Indicator of whether the participant/subject had complications during the pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15576	C15576	Imaging diffusion b-value count	Count of b-values within the diffusion imaging study	Supplemental	Anatomical Imaging	False	Headache	Headache
F2490-C00714	C00714	Behavioral history assessment date and time	Date (and time, if applicable and known) the participant/subject behavioral history was taken	Supplemental	Behavioral History	False	Headache	Headache
F2610-C56113	C56113	CSF specimen white blood cell count	The number of white blood cells (WBCs) counted in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2621-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Social Status	False	Headache	Headache
F2491-C56703	C56703	Imaging magnetoencephalography processing tool package other text	Text describing another processing tool/package used for analyzing the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2614-C59016	C59016	Imaging metabolite quantification procedure phantom data reference acquire indicator	Whether the phantom data was acquired for reference	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F1362-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Exam	False	Headache	Headache
F2610-C54754	C54754	Specimen collection tube other text	The free-text field related to other tube for specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.