CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 1122
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15966 Diary day headache indicator

Indicator of whether the participant/subject experienced a headache on a particular day

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56133 Frozen aliquot volume unit of measure

The unit the frozen aliquot volume was measured in

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15978 Headache re-start date and time

The time of the day (24 hr clock) that the headache restarted

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56778 Headache pain hurt most eye type

The eye that hurts the most due to headache pain

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C16177 Post-menopausal indicator

Indicates whether participant/subject is post-menopausal

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15897 Headache associated symptom type

The associated symptoms the participant/subject experienced with headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56123 Specimen centrifugation performed indicator

The indicator relating to whether centrifugation was performed on the specimen

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental-Highly Recommended Headache Calendar Headache Headache
C19034 Headache or migraine medication taken other text

The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56783 Headache re-start medication taken time

The time at which the participant/subject took the pain medication for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C13210 Generalized Anxiety Disorder (GAD-7) - easily annoyed scale

Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
C15950 Headache typical pain type

Type of pain the participant/subject experiences with the headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C07435 Patient Health Questionnaire (PHQ) - Abnormal diet score

Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C15975 Headache post initial study medication time interval

The time interval after taking initial study medication for headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15967 Diary day migraine indicator

Indicator of whether the participant/subject thought the headache was a migraine

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56134 Specimen freezing time

The time of specimen freezing

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15979 Headache re-start end date and time

The time of the day (24 hr clock) that the headache ended after headache restarted

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56779 Headache sound aggravate indicator

The indicator relating to whether sound aggravates the participant/subject or makes his/her headache worse

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15893 Headache retire bed indicator

Indicates whether the participant/subject went to bed with the headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15899 Headache worst pain anatomic site

Location of worst headache pain

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56042 Headache severity scale

The scale of the amount of headache the participant/subject is experiencing

Supplemental-Highly Recommended Headache Calendar Headache Headache
C53077 Migraine headache light indicator

Indicator as to whether light bothers participant/subject when experiencing a migraine headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56784 Headache re-start medication taken other text

Text describing another type of pain medication taken by the participant/subject for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C13211 Generalized Anxiety Disorder (GAD-7) - feeling afraid scale

Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
Displaying 1 - 25 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.