CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1273
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C15899 Headache worst pain anatomic site

Location of worst headache pain

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15967 Diary day migraine indicator

Indicator of whether the participant/subject thought the headache was a migraine.

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C14680 Pediatric Migraine Disability Assessment (MIDAS) - headache decrease school function day count

Count days functioning at less than half your ability in school in the last 3 months due to headaches, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form.

Supplemental-Highly Recommended Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS) Headache Headache
C15978 Headache re-start date and time

The time of the day (24 hr clock) that the headache restarted

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C17029 Migraine Disability Assessment (MIDAS) - Headache average pain intensity scale

Average pain scale of the headache experienced by the participant/subject, as part of the Migraine Disability Assessment (MIDAS) Test form.

Supplemental-Highly Recommended Migraine Disability Assessment Test (MIDAS) Headache Headache
C56784 Headache re-start medication taken other text

Text describing another type of pain medication taken by the participant/subject for his/her re-started headache.

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56778 Headache pain hurt most eye type

The eye that hurts the most due to headache pain.

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C13211 Generalized Anxiety Disorder (GAD-7) - feeling afraid scale

Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7).

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
C56127 Other processing method performed indicator

The indicator relating to whether any other processing methods were performed.

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C07432 Patient Health Questionnaire (PHQ) - Sleep impairment score

Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ).

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C15961 Headache worse during activity indicator

Indicates whether activity or playing makes headache worse

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C07441 Patient Health Questionnaire (PHQ) - Difficulty performing scale

The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ).

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C15976 Headache post initial study medication date and time

The actual time (24 hr clock) after taking initial study medication for headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56042 Headache severity scale

The scale of the amount of headache the participant/subject is experiencing.

Supplemental-Highly Recommended Headache Calendar Headache Headache
C53077 Migraine headache light indicator

Indicator as to whether light bothers participant/subject when experiencing a migraine headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C55009 Specimen storage temperature value

The temperature value for the specimen being stored.

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15917 Headache typical pain intensity scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56093 Specimen collected for biomarker indicator

The indicator relating to whether the participant had any specimen(s) collected for biomarkers.

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15969 Headache or migraine medication taken type

Type of pain medication(s) taken by participant/subject

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C14681 Pediatric Migraine Disability Assessment (MIDAS) - headache cease home function day count

Count the days you were not able to do things at home (i.e., chores, homework, etc.) in the last 3 months due to a headache, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form.

Supplemental-Highly Recommended Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS) Headache Headache
C56102 Biomarker specimen type

The type of specimen or specimens collected from the participant/subject for biomarkers.

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15979 Headache re-start end date and time

The time of the day (24 hr clock) that the headache ended after headache restarted

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56785 Headache premonitory symptom type

The type of premonitory symptom(s) (symptoms that come before headache) that the participant/subject experienced.

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56779 Headache sound aggravate indicator

The indicator relating to whether sound aggravates the participant/subject or makes his/her headache worse.

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
Displaying 1 - 25 of 1273

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.