CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1122
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C53077 Migraine headache light indicator

Indicator as to whether light bothers participant/subject when experiencing a migraine headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56784 Headache re-start medication taken other text

Text describing another type of pain medication taken by the participant/subject for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15939 Headache typical level activities affected result

Result of onset of headache in usually daily activities

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15961 Headache worse during activity indicator

Indicates whether activity or playing makes headache worse

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15976 Headache post initial study medication date and time

The actual time (24 hr clock) after taking initial study medication for headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Headache Headache
C15971 Headache warning symptom indicator

Indicator for any auras (warnings) that the headache was going to start

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15966 Diary day headache indicator

Indicator of whether the participant/subject experienced a headache on a particular day

Supplemental-Highly Recommended Headache Calendar Headache Headache
C56102 Biomarker specimen type

The type of specimen or specimens collected from the participant/subject for biomarkers

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C19027 Headache worst pain anatomic other text

The free-text field related to 'Headache worst pain anatomic site' specifying other text. Location of worst headache pain

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C07438 Patient Health Questionnaire (PHQ) - Movement speech impairment score

Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C56781 Headache re-start pain medication indicator

The indicator relating to whether the participant/subject took any pain medications for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56777 Headache start date and time

The time at which the participant/subject's headache started

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56785 Headache premonitory symptom type

The type of premonitory symptom(s) (symptoms that come before headache) that the participant/subject experienced

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15893 Headache retire bed indicator

Indicates whether the participant/subject went to bed with the headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15962 Headache affect activity level indicator

Indicates whether the headache changes activity level (i.e., stop playing)

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15977 Headache end date and time

The time of the day the headache ended

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56129 Specimen frozen indicator

The indicator relating to whether the specimen was frozen

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C13209 Generalized Anxiety Disorder (GAD-7) - restless scale

Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
C56093 Specimen collected for biomarker indicator

The indicator relating to whether the participant had any specimen(s) collected for biomarkers

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15972 Headache aura symptom type

Type of aura (warning) that a headache was going to start

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15967 Diary day migraine indicator

Indicator of whether the participant/subject thought the headache was a migraine

Supplemental-Highly Recommended Headache Calendar Headache Headache
C07430 Patient Health Questionnaire (PHQ) - Little interest score

Score of how much the subject has been bothered by having little interest or pleasure in doing things in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
Displaying 1 - 25 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.