CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

1273 results.
Operations
Selected 23 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C14681 Pediatric Migraine Disability Assessment (MIDAS) - headache cease home function day count

Count the days you were not able to do things at home (i.e., chores, homework, etc.) in the last 3 months due to a headache, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form.

Supplemental-Highly Recommended Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS) Headache Headache
C13207 Generalized Anxiety Disorder (GAD-7) - worry too much scale

Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7).

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
C56782 Headache re-start medication taken type

Type of pain medication(s) taken by participant/subject for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56102 Biomarker specimen type

The type of specimen or specimens collected from the participant/subject for biomarkers.

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15917 Headache typical pain intensity scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15969 Headache or migraine medication taken type

Type of pain medication(s) taken by participant/subject

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C10626 Condition diary date and time

Date (and time, if applicable and known) the diary data are recorded

Supplemental-Highly Recommended Headache Calendar Headache Headache
C15980 Headache affected activity type

Types of school or other activities affected by the headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C07436 Patient Health Questionnaire (PHQ) - Feeling failure score

Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ).

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15961 Headache worse during activity indicator

Indicates whether activity or playing makes headache worse

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C17028 Migraine Disability Assessment (MIDAS) - Headache past three months day count

Count the total number of days in the past three months the participant/subject had headache, as part of the Migraine Disability Assessment (MIDAS) Test form.

Supplemental-Highly Recommended Migraine Disability Assessment Test (MIDAS) Headache Headache
C15976 Headache post initial study medication date and time

The actual time (24 hr clock) after taking initial study medication for headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56781 Headache re-start pain medication indicator

The indicator relating to whether the participant/subject took any pain medications for his/her re-started headache.

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C19034 Headache or migraine medication taken other text

The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C14682 Pediatric Migraine Disability Assessment (MIDAS) - headache cease other activity function day count

Count the days you were not able to participate in other activities due to headaches (i.e., play, go out, sports, etc.), as part of migraine disability assessment (MIDAS) questionnaire-pediatric form.

Supplemental-Highly Recommended Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS) Headache Headache
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7).

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
C56783 Headache re-start medication taken time

The time at which the participant/subject took the pain medication for his/her re-started headache.

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15937 Headache typical severity type

The participant's/subject's typical headache pain severity

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15971 Headache warning symptom indicator

Indicator for any auras (warnings) that the headache was going to start

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15966 Diary day headache indicator

Indicator of whether the participant/subject experienced a headache on a particular day.

Supplemental-Highly Recommended Headache Calendar Headache Headache
C56129 Specimen frozen indicator

The indicator relating to whether the specimen was frozen.

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C19027 Headache worst pain anatomic other text

The free-text field related to 'Headache worst pain anatomic site' specifying other text. Location of worst headache pain

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
1273 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.