CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2492-C12710	C12710	Electrophysiology assessment date and time	Date the particular electrophysiology study was performed	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F3059-C59641	C59641	Headache aura occurrence indicator	Indicator of whether the participant/subject has an aura occur with headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C55782	C55782	Imaging scanner software hardware update text	Text describing any scanner software or hardware updates during the time the study was performed	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2629-C16003	C16003	Relative second degree decease count	The number of the participant/subject second-degree deceased relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2492-C56765	C56765	Cortical evoked potential habituation first last block percentage value	The percentage of habituation or adaptation between the first and last block of the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2634-C15529	C15529	Imaging quality assurance/quality control (QA/QC) implemented techniques text	Free text field to describe the quality assurance techniques implemented	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C15555	C15555	Imaging visual analysis performed indicator	Whether visual analysis was performed while blind to clinical data	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2625-C56048	C56048	Migraine without aura headache attack 72 hours indicator	Indicator relating to whether or not the participant/subject had at a headache attack lasting between 4 and 72 hours that was either untreated or unsuccessfully treated	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2491-C56613	C56613	Imaging magnetoencephalography sensor array type	The type of sensor array used for MEG imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C55777	C55777	Imaging inter peri ictal headache since end duration	The duration of time since the end of the subject's last inter-ictal or peri-ictal headahe	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2618-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	Rescue Treatments	False	Headache	Headache
F2490-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Headache	Headache
F3059-C59660	C59660	Headache prior diagnosis indicator	Indicator of whether the participant/subject had a prior headache diagnosis	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C56604	C56604	Region coordinate x value	Value representing the region's x coordinate	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2629-C17986	C17986	Relative first degree total count unknown indicator	Indicator of the unknown total number of first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2634-C15600	C15600	Imaging stimulation off period duration	Duration of off period of the stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C18719	C18719	Imaging slice orientation type other text	The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2625-C56103	C56103	Migraine with aura no better International Classification of Headache Disorders diagnosis indicator	Indicator related to whether or not the patient/subject's condition might be better accounted for by another ICHD-3 diagnosis, and that transient ischaemic attack has been excluded	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2492-C56733	C56733	Cortical evoked potential spatial frequency	The spatial frequency for patterns related to cortical evoked potentials	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2618-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	Supplemental	Rescue Treatments	False	Headache	Headache
F2610-C56151	C56151	Last cigarette smoked before sample collection time	The time since the participant last smoked a cigarette before sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2490-C18670	C18670	Subscribed drug or substance illicitly used category other text	The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Headache	Headache
F2491-C56706	C56706	Imaging magnetoencephalography latency type	The type of latency used as an approach for the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F1362-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	Headache	Headache
F3059-C59668	C59668	Headache symptom change after traumatic brain injury type	Type of headache symptoms experienced by the participant/subject following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.