CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 1122

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C56043	C56043	Headache migraine onset time	The time that the subject's headache started	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F3059-C59643	C59643	Headache aura experience percent value	Value of (the percentage of) headaches the participant/subject experience with auras	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C56598	C56598	Imaging functional scan patient task type	The type of task that the patient performed for the evoked functional scan, if applicable	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2629-C16012	C16012	Medical history condition diagnosis indicator	Indicator of whether the participant has been diagnosed with the medical condition/disease	Supplemental	Medical and Family History	False	Headache	Headache
F2634-C15580	C15580	Imaging acquisition type	Type of imaging acquisition	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C15561	C15561	Imaging angiography contrast enhanced text	If contrast enhanced in angiography, specify the method	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2625-C56050	C56050	Migraine without aura symptom during headache type	Type of symptom the patient/subject reports as having occurred during his or her headache	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2491-C56615	C56615	Imaging magnetoencephalography sensor channel number	The MEG sensor number or channel number used for imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C56646	C56646	Imaging online averaging status	The status of whether or not on-line averaging is being performed	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2618-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Rescue Treatments	False	Headache	Headache
F2490-C00710	C00710	Tobacco current use indicator	Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time	Supplemental	Behavioral History	False	Headache	Headache
F2491-C56700	C56700	Imaging magnetoencephalography reconstruction dipole modeling other text	Text describing another type of dipole modeling used for reconstruction of the magnetoencephalography (MEG) recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59662	C59662	Headache prior diagnosis type other text	The free-text field related to 'Headache prior diagnosis type' specifying other text	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C56606	C56606	Region coordinate z value	Value representing the region's z coordinate	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2629-C17988	C17988	Relative first degree decease count unknown indicator	Indicator of the unknown number of deceased first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2634-C15606	C15606	Imaging multiple evoked functional acquisitions indicator	Multiple evoked functional acquisitions	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C55773	C55773	Imaging MRI scanner used count	The number of different MRI scanners that were used on the subject	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2625-C56105	C56105	Chronic migraine fulfill International Classification of Headache Disorders criteria B C indicator	Indicator related to whether or not the patient/subject has headaches (tension-type-like and/or migraine) for =15 days per month for >3 months, and fulfills criteria B and C from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2492-C56735	C56735	Cortical evoked potential temporal frequency	The temporal frequency of the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2618-C56040	C56040	Headache migraine rescue device used start date	The start date on which the rescue device was used in the treatment of headache or migraine	Supplemental	Rescue Treatments	False	Headache	Headache
F2611-C10845	C10845	Gene screened indicator	Indicator whether the participant/subject was screened for the specific gene mutation (e.g., Superoxide dismutase 1, Fused in sarcoma, TAR DNA binding protein) commonly seen in the disease or disorder	Supplemental	DNA Elements	False	Headache	Headache
F2490-C55907	C55907	Nonsubscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs unsubscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Headache	Headache
F2491-C56708	C56708	Imaging magnetoencephalography amplitude type	The amplitude used for analysis of the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F1362-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Supplemental	Physical Exam	False	Headache	Headache
F3059-C59670	C59670	Headache mild before traumatic brain injury average monthly frequency	Average monthly frequency of headaches the participant/subject experienced with mild severity prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache

Displaying 76 - 100 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.