CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1273
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Headache Headache
C01541 Weight measurement

Measurement of participant's/subject's weight

Core Vital Signs Headache Headache
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Core Social Status Headache Headache
C01582 Height unit of measure

Unit of measure for the height numerical value for subject/participant

Core Vital Signs Headache Headache
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Headache Headache
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Core Vital Signs Headache Headache
C00204 Employment current status

Status of participant/subject's current employment

Core Social Status Headache Headache
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Headache Headache
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Headache Headache
C56059 Headache 28 day prior sample collection rate

The rate of the participant's headaches during the 28 days prior to sample collection

Core Biospecimens Collection and Processing Headache Headache
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Headache Headache
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Headache Headache
C19500 Assessment performed date

The date of assessment of the examination being performed

Core Demographics Headache Headache
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Headache Headache
C01522 Height measurement

Measurement of participant's/subject's height

Core Vital Signs Headache Headache
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Core Social Status Headache Headache
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Headache Headache
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Core Vital Signs Headache Headache
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Headache Headache
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Headache Headache
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core Vital Signs Headache Headache
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Core Social Status Headache Headache
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Core Vital Signs Headache Headache
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Headache Headache
C17007 Headache Impact Questionnaire (HImQ) - headache scale

Scale the pain from your headache on a scale of 0 to 10, as part of Headache Impact Questionnaire

Exploratory Headache Impact Questionnaire (HImQ) Headache Headache
Displaying 1 - 25 of 1273

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.