CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 1122

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2032-C07435	C07435	Patient Health Questionnaire (PHQ) - Abnormal diet score	Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2610-C56067	C56067	Participant current smoker indicator	The indicator relating to whether the participant is a current smoker	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2624-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2618-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	Supplemental	Rescue Treatments	False	Headache	Headache
F2620-C18023	C18023	Pain intensity stimulation result	Scale of 0-10 used to measure the intensity of the pain resulting from stimulation	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2640-C01554	C01554	Oxygen saturation measurement	Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry	Supplemental	Vital Signs	False	Headache	Headache
F2490-C55977	C55977	Overall diet health scale	A general scale of how healthy the participant/subject's diet is	Supplemental	Behavioral History	False	Headache	Headache
F2610-C56082	C56082	Over the counter medication supplement quantity value	The value representing the quantity of the participant's over-the-counter medication and/or supplements	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56080	C56080	Over the counter medication supplement name	The name of the participant's over-the-counter medication and/or supplements	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56081	C56081	Over the counter medication supplement dose	The dose of the participant's over-the-counter medication and/or supplements	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56128	C56128	Other processing method performed text	Text specifying any other processing methods that were performed	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56127	C56127	Other processing method performed indicator	The indicator relating to whether any other processing methods were performed	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56130	C56130	Original specimen repeated refrozen rethawed indicator	The indicator relating to whether the original specimen has been repeatedly re-frozen or re-thawed	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2490-C55907	C55907	Nonsubscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs unsubscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Headache	Headache
F2619-C18001	C18001	Newborn complication child specification text	Text specifying other newborn complications	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16067	C16067	Newborn complication child indicator	Indicates whether there were other newborn complications experienced by the participant's/subject's child	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C11079	C11079	Neonate delivery route type	Route of delivery of the neonate	Exploratory	Pregnancy Outcome	False	Headache	Headache
F3059-C59680	C59680	Neck pain stiffness without headache indicator	Indicator of whether participant/subject experienced neck pain/stiffness without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59648	C59648	Neck pain stiffness without headache frequency category	Category that describes how frequently the headache associated symptom of neck pain/stiffness affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59676	C59676	Nausea without headache indicator	Indicator of whether participant/subject experienced nausea without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59644	C59644	Nausea without headache frequency category	Category that describes how frequently the headache associated symptom of nausea effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2639-C15985	C15985	Multiple birth indicator	Indicates whether the participant/subject was a part of a multiple live birth	Supplemental	Demographics	False	Headache	Headache
F2622-C15583	C15583	Multiple application indicator	The indicator of whether the participant/subject received multiple TMS Imaging applications, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F3060-C59627	C59627	Month code	Ordinal month code identifying the month within a specified count of months	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C00208	C00208	Military USA service branch type	Branch of service in the U.S. military, not including the Commissioned Corps	Supplemental	Social Status	False	Headache	Headache

Displaying 201 - 225 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.