CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1362-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Supplemental	Physical Exam	False	Headache	Headache
F1362-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	Headache	Headache
F1362-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Exam	False	Headache	Headache
F1362-C01028	C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Exam	False	Headache	Headache
F1362-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Exam	False	Headache	Headache
F1362-C01014	C01014	Physical exam abnormality significance type	An indication if the physical exam abnormality in a specific body system is clinically significant	Supplemental	Physical Exam	False	Headache	Headache
F2619-C16050	C16050	Phenotypic sex child type	Sex of the participant/subject's child based on physical examination	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2630-C13996	C13996	PET localization uptake type	Indicates the degree of absorption or level of ligand tracer binding in the brain scan	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2630-C13999	C13999	PET localization study type	The PET localization study conclusion	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2630-C13995	C13995	PET localization rating type	Localization rating indicator of imaging using positron emission tomography (PET)	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2630-C13997	C13997	PET localization distribution pattern type	General pattern of tracer binding/uptake based on the Positron Emission Tomography (PET) scan	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2490-C56008	C56008	Perceived Stress Scale (PSS) - Unable control important thing life scale	Scale of how often in the last month that the participant/subject has felt that he or she was unable to control the important things in his/her life	Supplemental	Behavioral History	False	Headache	Headache
F2490-C56010	C56010	Perceived Stress Scale (PSS) - Thing going your way scale	Scale of how often in the last month that the participant/subject has felt that things were going his or her way	Supplemental	Behavioral History	False	Headache	Headache
F2490-C56011	C56011	Perceived Stress Scale (PSS) - Difficulty piling up unable overcome scale	Scale of how often in the last month that the participant/subject has felt that difficulties were piling up so high that he or she could not overcome them	Supplemental	Behavioral History	False	Headache	Headache
F2490-C56009	C56009	Perceived Stress Scale (PSS) - Confident handle personal problem scale	Scale of how often in the last month that the participant/subject has felt confident in his or her ability to handle his or her personal problems	Supplemental	Behavioral History	False	Headache	Headache
F2032-C07440	C07440	Patient Health Questionnaire - (PHQ) - Depression questionnaire total score	Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07433	C07433	Patient Health Questionnaire (PHQ) - Tired little energy score	Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07432	C07432	Patient Health Questionnaire (PHQ) - Sleep impairment score	Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07438	C07438	Patient Health Questionnaire (PHQ) - Movement speech impairment score	Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07430	C07430	Patient Health Questionnaire (PHQ) - Little interest score	Score of how much the subject has been bothered by having little interest or pleasure in doing things in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07436	C07436	Patient Health Questionnaire (PHQ) - Feeling failure score	Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07441	C07441	Patient Health Questionnaire (PHQ) - Difficulty performing scale	The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07431	C07431	Patient Health Questionnaire (PHQ) - Depressed score	Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07437	C07437	Patient Health Questionnaire (PHQ) - Concentration impairment score	Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07439	C07439	Patient Health Questionnaire (PHQ) - Better dead thought score	Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.