CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 876 - 900 of 1122
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15962 Headache affect activity level indicator

Indicates whether the headache changes activity level (i.e., stop playing)

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15962 Headache affect activity level indicator

Indicates whether the headache changes activity level (i.e., stop playing)

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C59640 Headache additional symptom unilateral same side present indicator

Indicator of whether the participant's/subject's symptom is present on the same side to the headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59640 Headache additional symptom unilateral same side present indicator

Indicator of whether the participant's/subject's symptom is present on the same side to the headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59638 Headache additional symptom type present indicator

Indicator of whether the participant's/subject's headache symptom is present

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59638 Headache additional symptom type present indicator

Indicator of whether the participant's/subject's headache symptom is present

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59637 Headache additional symptom type

Type of additional symptoms the participant/subject experienced with headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59637 Headache additional symptom type

Type of additional symptoms the participant/subject experienced with headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59639 Headache additional symptom laterality type

Laterality type of the participant's/subject's headache symptom

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59639 Headache additional symptom laterality type

Laterality type of the participant's/subject's headache symptom

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C56059 Headache 28 day prior sample collection rate

The rate of the participant's headaches during the 28 days prior to sample collection

Core Biospecimens Collection and Processing Headache Headache
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs Headache Headache
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Vital Signs Headache Headache
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Supplemental Physical Exam Headache Headache
C16056 Gestational age child value

Time elapsed between the first day of the last normal menstrual period and the day the participant/subject delivered the neonate

Exploratory Pregnancy Outcome Headache Headache
C15520 Genetic testing performed indicator

Indicator of whether the participant had genetic testing performed

Supplemental DNA Elements Headache Headache
C56032 Genetic testing performed family member reason txt

Text describing the reason for genetic testing for the subject's family members

Supplemental DNA Elements Headache Headache
C56030 Genetic testing performed family member indicator

The indicator relating to whether any of the subject's family members have had genetic testing

Supplemental DNA Elements Headache Headache
C56036 Genetic testing genotype performed type

The type of genotyping performed in the subject's genetic testing

Supplemental DNA Elements Headache Headache
C56035 Genetic test result source type other text

The free-text field related to 'Genetic test result source type', specifying other text. Type of source of the participant's genetic test results

Supplemental DNA Elements Headache Headache
C56033 Genetic test result source type

Type of source of the participant's genetic test results

Supplemental DNA Elements Headache Headache
C56038 Genetic test performed other text

The free-text field specifying the other genetic test that was performed

Supplemental DNA Elements Headache Headache
C13207 Generalized Anxiety Disorder (GAD-7) - worry too much scale

Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
C13212 Generalized Anxiety Disorder (GAD-7) - total score

Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
Displaying 876 - 900 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.