CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2629-C17990	C17990	Relative second degree live count unknown indicator	Indicator of the unknown number of living second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16002	C16002	Relative second degree live count	The total number of the participant/subject second-degree living relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56025	C56025	Relative second degree decease primary cause text	Text describing the primary cause of the subject's second-degree relative's death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56024	C56024	Relative second degree decease death age value	Value representing the age of the subject's second-degree relative at their time of death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17991	C17991	Relative second degree decease count unknown indicator	Indicator of the unknown number of deceased second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16003	C16003	Relative second degree decease count	The number of the participant/subject second-degree deceased relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17986	C17986	Relative first degree total count unknown indicator	Indicator of the unknown total number of first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C15997	C15997	Relative first degree total count	Count of the total number of first-degree relatives the participant/subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17987	C17987	Relative first degree live count unknown indicator	Indicator of the unknown number of living first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C15998	C15998	Relative first degree live count	The total number of the participant/subject first-degree living relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56018	C56018	Relative first degree decease primary cause text	Text describing the primary cause of the subject's first-degree relative's death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56017	C56017	Relative first degree decease death age value	Value representing the age of the subject's first-degree relative at their time of death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C17988	C17988	Relative first degree decease count unknown indicator	Indicator of the unknown number of deceased first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C15999	C15999	Relative first degree decease count	The total number of the participant/subject first-degree deceased relatives	Supplemental	Medical and Family History	False	Headache	Headache
F3060-C59658	C59658	Relative biological first degree diagnosis headache history indicator	Indicator of whether first-degree biological relatives of the participant/subject has a history of diagnosed headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59658	C59658	Relative biological first degree diagnosis headache history indicator	Indicator of whether first-degree biological relatives of the participant/subject has a history of diagnosed headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2490-C55989	C55989	Regular aerobic exercise indicator	Indicator related to whether or not the participant/subject participates in regular aerobic exercise	Supplemental	Behavioral History	False	Headache	Headache
F2490-C55993	C55993	Regular aerobic exercise days week number	Number of days per typical week that the participant/subject engages in aerobic exercises	Supplemental	Behavioral History	False	Headache	Headache
F2634-C56606	C56606	Region coordinate z value	Value representing the region's z coordinate	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2634-C56605	C56605	Region coordinate y value	Value representing the region's y coordinate	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2634-C56604	C56604	Region coordinate x value	Value representing the region's x coordinate	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2610-C56088	C56088	Recreational substance quantity value	The value representing the quantity of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56086	C56086	Recreational substance name	The name of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56087	C56087	Recreational substance dose	The dose of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2639-C00032	C00032	Race USA paternal category	Race(s) the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.