CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 1122

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C56123	C56123	Specimen centrifugation performed indicator	The indicator relating to whether centrifugation was performed on the specimen	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55005	C55005	Specimen centrifugation duration	The duration related to centrifugation	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56106	C56106	Specimen blood collection type	The type of blood component that was collected	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F3059-C59679	C59679	Sound sensitive without headache indicator	Indicator of whether participant/subject experienced sensitivity to sound without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2639-C14124	C14124	Social security number	A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government	Supplemental	Demographics	False	Headache	Headache
F2629-C56020	C56020	Sibling live count unknown indicator	The indicator relating to whether or not the subject knows how many living siblings he/she has	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56019	C56019	Sibling live count	The total number of alive siblings that the subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56023	C56023	Sibling decease primary cause text	Text describing the primary cause of the subject's sibling's death	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56022	C56022	Sibling decease count unknown indicator	The indicator relating to whether or not the subject knows how many deceased siblings he/she has	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56021	C56021	Sibling decease count	The total number of deceased siblings that the subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C08087	C08087	Sibling death age value	Age of sibling when he/she died	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C56028	C56028	Sibling count	The total number of siblings the subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2639-C55578	C55578	Sexual orientation type	Self-reported sexual orientation of the participant/subject	Supplemental	Demographics	False	Headache	Headache
F2639-C55577	C55577	Sex at Birth Type	Self-reported sex of the participant/subject at birth	Supplemental	Demographics	False	Headache	Headache
F2639-C55904	C55904	Sex at birth other text	Text describing another variety of the subject's self-proclaimed sex at his/her birth	Supplemental	Demographics	False	Headache	Headache
F2634-C19330	C19330	Sensory evoked potential stimulation count	The number of stimulations in sensory evoked potential	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F3060-C59647	C59647	Sensitivity to sound without headache frequency category	Category that describes how frequently the headache associated symptom of sensitivity to sound effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59646	C59646	Sensitivity to light without headache frequency category	Category that describes how frequently the headache associated symptom of sensitivity to light effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Social Status	False	Headache	Headache
F2610-C56098	C56098	Sample temperature before centrifugation storage value	The temperature of the biomarker sample before centrifugation or storage	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56053	C56053	Sample obtain with headache indicator	The indicator relating to the sample being obtained while the participant was having a headache	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56056	C56056	Sample collection headache diagnosis text	Text describing the headache diagnosis at the time of sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2640-C01535	C01535	Respiratory rate	Rate of the participant's breathing (inhalation and exhalation)	Supplemental	Vital Signs	False	Headache	Headache
F2629-C17989	C17989	Relative second degree total count unknown indicator	Indicator of the unknown total number of second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16001	C16001	Relative second degree total count	The total number of the participant/subject second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.