CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1122
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10677 ZIP partial code

First three digits of the zip code where the participant/subject currently lives

Supplemental Demographics Headache Headache
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Core Vital Signs Headache Headache
C15902 Weight to height ratio value

Ratio of participant/subject's weight to height

Supplemental Vital Signs Headache Headache
C15900 Weight percentile value

The participant/subject's weight percentile for age calculated using a standardized growth chart

Supplemental Vital Signs Headache Headache
C01546 Weight measurement method type

Type of method use to measure the participant's/subject's body weight

Supplemental Vital Signs Headache Headache
C01541 Weight measurement

Measurement of participant's/subject's weight

Core Vital Signs Headache Headache
C16060 Weight delivery mother unit of measure

Units for the measurement of the participant's/subject's weight at the time she gave birth

Exploratory Pregnancy Outcome Headache Headache
C55935 Weight birth child unit of measure

Measure of the weight of the participant/subject's child at birth

Exploratory Pregnancy Outcome Headache Headache
C59625 Week month code

Ordinal week code for the weeks in a single month

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C15907 Waist circumference measurement unit of measure

Units used to calculate waist participant/subject's hip circumference

Supplemental Vital Signs Headache Headache
C14428 Waist circumference measurement

A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button

Supplemental Vital Signs Headache Headache
C59645 Vomiting without headache frequency category

Category that describes how frequently the headache associated symptom of vomiting affects the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59677 Vomit without headache indicator

Indicator of whether participant/subject experienced vomiting without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C01519 Vital signs date and time

Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time

Core Vital Signs Headache Headache
C15989 Unemployed reason

Participant's/subject's reason for unemployment

Supplemental Social Status Headache Headache
C15915 Trial performed count

Number of times test was performed

Supplemental Quantitative Sensory Testing (QST) Headache Headache
C15586 Total amount received value

The value of the total amount of TMS applications the participant/subject received, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.

Supplemental Transcranial Magnetic Stimulation (TMS) Headache Headache
C17999 Tocolytic agents required during preterm specification text

Text specifying the tocolytic agents the participant/subject required during preterm labor

Exploratory Pregnancy Outcome Headache Headache
C16048 Tocolytic agents required during preterm labor indicator

Indicator of whether medications used to suppress premature labor were required during preterm labor

Exploratory Pregnancy Outcome Headache Headache
C00701 Tobacco use stopped age value

Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Headache Headache
C55953 Tobacco use stopped age not applicable status

Status indicating that age stopped tobacco use does not apply to the subject/participant as they are still using tobacco

Supplemental Behavioral History Headache Headache
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Headache Headache
C06108 Tobacco smoke pack-year value

If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]

Supplemental Behavioral History Headache Headache
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

Supplemental Behavioral History Headache Headache
C55959 Tobacco packs smoked daily average value

Average number of packs of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Supplemental Behavioral History Headache Headache
Displaying 1 - 25 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.