CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C10677	ZIP partial code	First three digits of the zip code where the participant/subject currently lives	Supplemental	Demographics	False	Headache	Headache
C01581	Weight unit of measure	Unit of measure for the weight numerical value	Core	Vital Signs	False	Headache	Headache
C15902	Weight to height ratio value	Ratio of participant/subject's weight to height	Supplemental	Vital Signs	False	Headache	Headache
C15900	Weight percentile value	The participant/subject's weight percentile for age calculated using a standardized growth chart	Supplemental	Vital Signs	False	Headache	Headache
C01546	Weight measurement method type	Type of method use to measure the participant's/subject's body weight	Supplemental	Vital Signs	False	Headache	Headache
C01541	Weight measurement	Measurement of participant's/subject's weight	Core	Vital Signs	False	Headache	Headache
C16060	Weight delivery mother unit of measure	Units for the measurement of the participant's/subject's weight at the time she gave birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
C55935	Weight birth child unit of measure	Measure of the weight of the participant/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
C59625	Week month code	Ordinal week code for the weeks in a single month	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
C15907	Waist circumference measurement unit of measure	Units used to calculate waist participant/subject's hip circumference	Supplemental	Vital Signs	False	Headache	Headache
C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental	Vital Signs	False	Headache	Headache
C59645	Vomiting without headache frequency category	Category that describes how frequently the headache associated symptom of vomiting affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
C59677	Vomit without headache indicator	Indicator of whether participant/subject experienced vomiting without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C01519	Vital signs date and time	Date (and time, if applicable and known) the vital signs and other body measurements were taken by indicating the month, day, and year for the date and am, pm, or 24 hour clock for time	Core	Vital Signs	False	Headache	Headache
C15989	Unemployed reason	Participant's/subject's reason for unemployment	Supplemental	Social Status	False	Headache	Headache
C15915	Trial performed count	Number of times test was performed	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
C15586	Total amount received value	The value of the total amount of TMS applications the participant/subject received, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
C17999	Tocolytic agents required during preterm specification text	Text specifying the tocolytic agents the participant/subject required during preterm labor	Exploratory	Pregnancy Outcome	False	Headache	Headache
C16048	Tocolytic agents required during preterm labor indicator	Indicator of whether medications used to suppress premature labor were required during preterm labor	Exploratory	Pregnancy Outcome	False	Headache	Headache
C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Headache	Headache
C55953	Tobacco use stopped age not applicable status	Status indicating that age stopped tobacco use does not apply to the subject/participant as they are still using tobacco	Supplemental	Behavioral History	False	Headache	Headache
C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Headache	Headache
C06108	Tobacco smoke pack-year value	If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]	Supplemental	Behavioral History	False	Headache	Headache
C00711	Tobacco prior use indicator	Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months	Supplemental	Behavioral History	False	Headache	Headache
C55959	Tobacco packs smoked daily average value	Average number of packs of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.