CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2611-C56038	C56038	Genetic test performed other text	The free-text field specifying the other genetic test that was performed	Supplemental	DNA Elements	False	Headache	Headache
F2611-C56033	C56033	Genetic test result source type	Type of source of the participant's genetic test results	Supplemental	DNA Elements	False	Headache	Headache
F2611-C56035	C56035	Genetic test result source type other text	The free-text field related to 'Genetic test result source type', specifying other text. Type of source of the participant's genetic test results	Supplemental	DNA Elements	False	Headache	Headache
F2611-C56036	C56036	Genetic testing genotype performed type	The type of genotyping performed in the subject's genetic testing	Supplemental	DNA Elements	False	Headache	Headache
F2611-C56030	C56030	Genetic testing performed family member indicator	The indicator relating to whether any of the subject's family members have had genetic testing	Supplemental	DNA Elements	False	Headache	Headache
F2611-C56032	C56032	Genetic testing performed family member reason txt	Text describing the reason for genetic testing for the subject's family members	Supplemental	DNA Elements	False	Headache	Headache
F2611-C15520	C15520	Genetic testing performed indicator	Indicator of whether the participant had genetic testing performed	Supplemental	DNA Elements	False	Headache	Headache
F2619-C16056	C16056	Gestational age child value	Time elapsed between the first day of the last normal menstrual period and the day the participant/subject delivered the neonate	Exploratory	Pregnancy Outcome	False	Headache	Headache
F1362-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical Exam	False	Headache	Headache
F2640-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	Vital Signs	False	Headache	Headache
F2640-C01523	C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Vital Signs	False	Headache	Headache
F2610-C56059	C56059	Headache 28 day prior sample collection rate	The rate of the participant's headaches during the 28 days prior to sample collection	Core	Biospecimens Collection and Processing	False	Headache	Headache
F3060-C59639	C59639	Headache additional symptom laterality type	Laterality type of the participant's/subject's headache symptom	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59639	C59639	Headache additional symptom laterality type	Laterality type of the participant's/subject's headache symptom	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59637	C59637	Headache additional symptom type	Type of additional symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59637	C59637	Headache additional symptom type	Type of additional symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59638	C59638	Headache additional symptom type present indicator	Indicator of whether the participant's/subject's headache symptom is present	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59638	C59638	Headache additional symptom type present indicator	Indicator of whether the participant's/subject's headache symptom is present	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59640	C59640	Headache additional symptom unilateral same side present indicator	Indicator of whether the participant's/subject's symptom is present on the same side to the headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59640	C59640	Headache additional symptom unilateral same side present indicator	Indicator of whether the participant's/subject's symptom is present on the same side to the headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2673-C15962	C15962	Headache affect activity level indicator	Indicates whether the headache changes activity level (i.e., stop playing)	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15962	C15962	Headache affect activity level indicator	Indicates whether the headache changes activity level (i.e., stop playing)	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C15980	C15980	Headache affected activity type	Types of school or other activities affected by the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2673-C15980	C15980	Headache affected activity type	Types of school or other activities affected by the headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F3059-C59664	C59664	Headache after traumatic brain injury change indicator	Indicator of whether the participant's/subject's headaches after a traumatic brain injury changed followingf the TBI	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.