CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 901 - 925 of 1122
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15985 Multiple birth indicator

Indicates whether the participant/subject was a part of a multiple live birth

Supplemental Demographics Headache Headache
C59644 Nausea without headache frequency category

Category that describes how frequently the headache associated symptom of nausea effects the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59676 Nausea without headache indicator

Indicator of whether participant/subject experienced nausea without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59648 Neck pain stiffness without headache frequency category

Category that describes how frequently the headache associated symptom of neck pain/stiffness affects the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59680 Neck pain stiffness without headache indicator

Indicator of whether participant/subject experienced neck pain/stiffness without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C11079 Neonate delivery route type

Route of delivery of the neonate

Exploratory Pregnancy Outcome Headache Headache
C16067 Newborn complication child indicator

Indicates whether there were other newborn complications experienced by the participant's/subject's child

Exploratory Pregnancy Outcome Headache Headache
C18001 Newborn complication child specification text

Text specifying other newborn complications

Exploratory Pregnancy Outcome Headache Headache
C55907 Nonsubscribed drug or substance illicitly used category

Category of illegal drugs, prescription, or over-the-counter drugs unsubscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Behavioral History Headache Headache
C56130 Original specimen repeated refrozen rethawed indicator

The indicator relating to whether the original specimen has been repeatedly re-frozen or re-thawed

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C56127 Other processing method performed indicator

The indicator relating to whether any other processing methods were performed

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C56128 Other processing method performed text

Text specifying any other processing methods that were performed

Supplemental Biospecimens Collection and Processing Headache Headache
C56081 Over the counter medication supplement dose

The dose of the participant's over-the-counter medication and/or supplements

Supplemental Biospecimens Collection and Processing Headache Headache
C56080 Over the counter medication supplement name

The name of the participant's over-the-counter medication and/or supplements

Supplemental Biospecimens Collection and Processing Headache Headache
C56082 Over the counter medication supplement quantity value

The value representing the quantity of the participant's over-the-counter medication and/or supplements

Supplemental Biospecimens Collection and Processing Headache Headache
C55977 Overall diet health scale

A general scale of how healthy the participant/subject's diet is

Supplemental Behavioral History Headache Headache
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry

Supplemental Vital Signs Headache Headache
C18023 Pain intensity stimulation result

Scale of 0-10 used to measure the intensity of the pain resulting from stimulation

Supplemental Quantitative Sensory Testing (QST) Headache Headache
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental-Highly Recommended Headache Calendar Headache Headache
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

Supplemental Rescue Treatments Headache Headache
C56067 Participant current smoker indicator

The indicator relating to whether the participant is a current smoker

Supplemental Biospecimens Collection and Processing Headache Headache
C07435 Patient Health Questionnaire (PHQ) - Abnormal diet score

Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C07439 Patient Health Questionnaire (PHQ) - Better dead thought score

Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C07437 Patient Health Questionnaire (PHQ) - Concentration impairment score

Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C07431 Patient Health Questionnaire (PHQ) - Depressed score

Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.