CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3060-C59657	C59657	Headache type family history indicator	Indicator as to whether the participant/subject has a family history of diagnosed headache type	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59657	C59657	Headache type family history indicator	Indicator as to whether the participant/subject has a family history of diagnosed headache type	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2610-C56148	C56148	Headache type text	Text specifying the type of headache the participant/subject had, has, or is having	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2684-C15939	C15939	Headache typical level activities affected result	Result of onset of headache in usually daily activities	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2673-C15939	C15939	Headache typical level activities affected result	Result of onset of headache in usually daily activities	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F3060-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2684-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F3059-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2684-C19032	C19032	Headache typical pain other text	The free-text field related to 'Headache typical pain type' specifying other text. Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2673-C19032	C19032	Headache typical pain other text	The free-text field related to 'Headache typical pain type' specifying other text. Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F3060-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2684-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2673-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F3060-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2684-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F3059-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2684-C15971	C15971	Headache warning symptom indicator	Indicator for any auras (warnings) that the headache was going to start	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2673-C15971	C15971	Headache warning symptom indicator	Indicator for any auras (warnings) that the headache was going to start	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F3060-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2684-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache

Displaying 376 - 400 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.