CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 376 - 400 of 1122
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59657 Headache type family history indicator

Indicator as to whether the participant/subject has a family history of diagnosed headache type

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59657 Headache type family history indicator

Indicator as to whether the participant/subject has a family history of diagnosed headache type

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C56148 Headache type text

Text specifying the type of headache the participant/subject had, has, or is having

Exploratory Biospecimens Collection and Processing Headache Headache
C15939 Headache typical level activities affected result

Result of onset of headache in usually daily activities

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15939 Headache typical level activities affected result

Result of onset of headache in usually daily activities

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C19032 Headache typical pain other text

The free-text field related to 'Headache typical pain type' specifying other text. Type of pain the participant/subject experiences with the headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C19032 Headache typical pain other text

The free-text field related to 'Headache typical pain type' specifying other text. Type of pain the participant/subject experiences with the headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15950 Headache typical pain type

Type of pain the participant/subject experiences with the headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15950 Headache typical pain type

Type of pain the participant/subject experiences with the headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15950 Headache typical pain type

Type of pain the participant/subject experiences with the headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C15950 Headache typical pain type

Type of pain the participant/subject experiences with the headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C15937 Headache typical severity type

Level of headache intensity described by the participant/subject

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15937 Headache typical severity type

Level of headache intensity described by the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C15937 Headache typical severity type

Level of headache intensity described by the participant/subject

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15937 Headache typical severity type

Level of headache intensity described by the participant/subject

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C15971 Headache warning symptom indicator

Indicator for any auras (warnings) that the headache was going to start

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15971 Headache warning symptom indicator

Indicator for any auras (warnings) that the headache was going to start

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15961 Headache worse during activity indicator

Indicates whether activity or playing makes headache worse

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C15961 Headache worse during activity indicator

Indicates whether activity or playing makes headache worse

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C15961 Headache worse during activity indicator

Indicates whether activity or playing makes headache worse

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15961 Headache worse during activity indicator

Indicates whether activity or playing makes headache worse

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
Displaying 376 - 400 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.