CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 1122

« first
‹ previous
…
7
8
9
10
11
12
13
14
15
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3060-C59623	C59623	Headache after traumatic brain injury frequency change category	Category which represents headache frequency since participant/subject experienced a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59666	C59666	Headache after traumatic brain injury frequency change indicator	Indicator of whether the participant/subject is experiencing more frequenct headaches following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59624	C59624	Headache after traumatic brain injury intensity change category	Category which represents headache intensity since participant/subject experienced a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59665	C59665	Headache after traumatic brain injury intensity change indicator	Indicator of whether the participant/subject is experiencing more intense headaches following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3059-C59667	C59667	Headache after traumatic brain injury symptom change indicator	Indicator of whether the participant's/subject's headaches symptoms changed following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59613	C59613	Headache after traumatic brain injury worsen delay duration category	Category which represents when the participant's/subject's headaches began to worsen after a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2684-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F3060-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2673-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F3059-C59636	C59636	Headache associated symptom type frequency category	Category that describes how frequently the headache associated symptom type effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59636	C59636	Headache associated symptom type frequency category	Category that describes how frequently the headache associated symptom type effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59622	C59622	Headache at least 30 days ratio value	Value which represents the headache ratio calculation. Applies only to patients that have had post traumatic headache for at least 30 days	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59643	C59643	Headache aura experience percent value	Value of (the percentage of) headaches the participant/subject experience with auras	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59643	C59643	Headache aura experience percent value	Value of (the percentage of) headaches the participant/subject experience with auras	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59641	C59641	Headache aura occurrence indicator	Indicator of whether the participant/subject has an aura occur with headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59641	C59641	Headache aura occurrence indicator	Indicator of whether the participant/subject has an aura occur with headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C19035	C19035	Headache aura symptom other text	The free-text field related to 'Headache aura symptom type' specifying other text. Type of aura (warning) that a headache was going to start	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C19035	C19035	Headache aura symptom other text	The free-text field related to 'Headache aura symptom type' specifying other text. Type of aura (warning) that a headache was going to start	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2673-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F3060-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59642	C59642	Headache aura symptom type frequency category	Category that describes how the aura symptom type effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59642	C59642	Headache aura symptom type frequency category	Category that describes how the aura symptom type effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache

Displaying 251 - 275 of 1122

« first
‹ previous
…
7
8
9
10
11
12
13
14
15
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.