CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1122
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C16057 Activity pulse grimace appearance respiration five minute child score

Assessment of a newborn which is recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)

Exploratory Pregnancy Outcome Headache Headache
C16058 Activity pulse grimace appearance respiration ten minute child score

Assessment of a newborn which is recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)

Exploratory Pregnancy Outcome Headache Headache
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Supplemental Medical and Family History of Headache/Migraine Headache Headache
C17992 Additional comment text

Text describing any additional information about the participant or the participant's family history

Supplemental Medical and Family History Headache Headache
C10813 Adopted indicator

Whether the subject/participant was adopted

Supplemental Medical and Family History Headache Headache
C00008 Age value

Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject

Supplemental Demographics Headache Headache
C08088 Age value unit of measure

Unit of measure used to initially record the age value

Supplemental Demographics Headache Headache
C00707 Alcohol consume six or more drinks frequency

The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History Headache Headache
C00705 Alcohol current use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months

Supplemental Behavioral History Headache Headache
C00704 Alcohol drinking day average drinks consumed range

The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History Headache Headache
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental Behavioral History Headache Headache
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

Supplemental Behavioral History Headache Headache
C00708 Alcohol use related to hospitalization indicator

Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)

Supplemental Behavioral History Headache Headache
C00702 Alcohol use started age value

Age in years when participant/subject started ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Headache Headache
C55966 Alcohol use stopped age not applicable status

Status indicating that age quit drinking does not apply to the subject/participant, as they are still ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Headache Headache
C00700 Alcohol use stopped age value

Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Headache Headache
C56075 Alcoholic drink consume past week count

The number of alcoholic drinks that were consumed within the past week

Supplemental Biospecimens Collection and Processing Headache Headache
C56142 Assay lower detection limit value

The value of the lower limit of detection of the assay

Exploratory Biospecimens Collection and Processing Headache Headache
C56146 Assay result other text

The free-text field describing another result from the assay

Exploratory Biospecimens Collection and Processing Headache Headache
C56145 Assay result type

The results obtained from the assay

Exploratory Biospecimens Collection and Processing Headache Headache
C56140 Assay sensitivity specificity value

The value of the assay sensitivity and specificity

Exploratory Biospecimens Collection and Processing Headache Headache
C56141 Assay upper detection limit value

The value of the upper limit of detection of the assay

Exploratory Biospecimens Collection and Processing Headache Headache
C15910 Assessment date and time

The date of participant's injury

Supplemental Quantitative Sensory Testing (QST) Headache Headache
C19500 Assessment performed date

The date of assessment of the examination being performed

Core Demographics Headache Headache
C59652 Aura without headache frequency category

Category that describes how frequently the headache associated symptom of aura without headache affects the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.