CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0011-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0011-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0011-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0011-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0012-C02215	C02215	Study eligibility indicator	Indicator of whether the participant/subject is eligible for participation in the clinical research protocol according to its inclusion and exclusion criteria	Supplemental	Inclusion and Exclusion Criteria	False	General (For all diseases)	General (For all diseases)
F0012-C02216	C02216	Exclusion criterion not met number	Exclusion criterion number(s) the participant/subject did not meet	Supplemental	Inclusion and Exclusion Criteria	False	General (For all diseases)	General (For all diseases)
F0012-C02217	C02217	Inclusion criterion not met number	Inclusion criterion number(s) the participant/subject did not meet	Supplemental	Inclusion and Exclusion Criteria	False	General (For all diseases)	General (For all diseases)
F0013-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00002	C00002	Post conceptional age value	Gestational age plus postnatal age of the participant/subject	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00003	C00003	Postnatal age value	Time elapsed after birth of the participant/subject	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00314	C00314	Medical history taken date and time	Date (and time, if applicable and known) the participant's medical history was taken	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00723	C00723	APGAR ten minute score	Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C00724	C00724	APGAR five minute score	Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0013-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0016-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant was born	Core	Demographics	0	General (For all diseases)	General (For all diseases)
F0016-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant most closely identifies with	Core	Demographics	0	General (For all diseases)	General (For all diseases)
F0016-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant's father most closely identifies with	Supplemental	Demographics	0	General (For all diseases)	General (For all diseases)
F0016-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant's mother most closely identifies with	Supplemental	Demographics	0	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.