CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0005-C21118	C21118	Subject mailing address name	Name of the mailing address of subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21119	C21119	Subject home city name	Name of city in which the subject/participant lives	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21120	C21120	Subject home state province name	The name of the state or province that the subject/participant inhabits	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21121	C21121	Subject zip postal code number	The number of the subject/participant's zip/postal code	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21122	C21122	Subject home phone number	The home phone number of the subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21123	C21123	Subject other phone number	The other phone number of the subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0005-C21124	C21124	Subject email address name	The name of the email address of the subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0006-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0006-C21108	C21108	Visit present indicator	Indicator for the presence of the subject at the visit	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0006-C21109	C21109	Visit assessment complete type	Type of assessment completed during visit	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0006-C21110	C21110	Last visit indicator	Indicator for the visit being the last one	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0006-C21111	C21111	Form not completed indicator	Indicator for the incompletion of the form	Supplemental	Visit Checklist	False	General (For all diseases)	General (For all diseases)
F0008-C21112	C21112	Visit form name	Name of the form used during the visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0008-C21113	C21113	Visit screening indicator	Indicator for screening during visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0008-C21114	C21114	Visit post baseline day count	The number of days since baseline visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0008-C21115	C21115	Visit week count	Count of days in a week where a visit was made	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0008-C21116	C21116	Visit follow-up indicator	Indicator for a follow-up visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F0009-C02300	C02300	Adverse event study intervention action take type	Type of action taken for adverse event in relation to study intervention	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02301	C02301	Adverse event end date and time	Date (and time, if applicable and known) on which the adverse event discontinued/stopped	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02302	C02302	Adverse event other action take type	Type of action taken due to adverse event other than action taken with study intervention/ treatment	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02303	C02303	Adverse event outcome status	Final status of the participant related to the adverse event	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02304	C02304	Adverse event study intervention relatedness investigator assessment grade	Grade of the causality between the treatment modality/intervention and the specific adverse event	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02306	C02306	Adverse event start date and time	Date (and time, if applicable and known) on which the adverse event was first evident	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02307	C02307	Adverse event verbatim term text	The free-text field that describes the adverse event word for word as described by the participant	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)
F0009-C02308	C02308	Adverse event during study indicator	Indicator of whether the participant experienced any adverse events during the study	Supplemental	Adverse Events	0	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.