CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0013-C00319	C00319	Medical history condition ongoing indicator	Indicator of whether a medical condition/disease experienced by the participant is ongoing	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0003-C02209	C02209	Informed consent obtained indicator	Indicator of whether informed consent was obtained for the participant/subject to participate in the clinical research study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F2056-C21290	C21290	Quality of Life - Awake pain past week scale	The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbance	Supplemental	Neuro-QOL Adult Bank - Sleep Disturbance	True	General (For all diseases)	General (For all diseases)
F2049-C20780	C20780	Quality of Life - Fear terrible future occurrence past week scale	The scale which represents how often the participant felt something awful would happen in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	Supplemental	Neuro-QOL Adult Bank - Anxiety	True	General (For all diseases)	General (For all diseases)
F1055-C12536	C12536	Imaging dimension type	Type of imaging dimension used	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2055-C20752	C20752	Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity complete important ability satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the leisure activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21157	C21157	Quality of Life - Family activity expectation complete past week scale	The scale representing how often the participant was able to do all of the family activities that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0022-C02019	C02019	Study drug actual return count	Count of amount of study drug returned	Supplemental	Study Drug Compliance	False	General (For all diseases)	General (For all diseases)
F0009-C22702	C22702	Institutional review board notification indicator	Indicator of whether the Institutional Review Board (IRB) was notified following an adverse event	Supplemental	Adverse Events	False	General (For all diseases)	General (For all diseases)
F1053-C18703	C18703	Imaging parallel acquisition used other text	The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F0013-C59688	C59688	COVID-19 first date not applicable status	Status denoting that the date the participant/subject was first told or first thought that they had coronavirus disease 2019 (COVID-19) is not applicable	Supplemental	Medical History	False	General (For all diseases)	General (For all diseases)
F0003-C18493	C18493	Screening visit eligibility status	The status determined from screening criteria that indicates whether a participant/subject may be eligible for a study	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F2057-C21298	C21298	Quality of Life - Stigma illness physical limit embarassment recent assessment scale	The scale representing how often the participant felt embarassed because of their physical limitations lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F2049-C20793	C20793	Quality of Life - Tension assessment past week scale	The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety	Supplemental	Neuro-QOL Adult Bank - Anxiety	True	General (For all diseases)	General (For all diseases)
F1055-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2055-C20767	C20767	Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance ability satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21165	C21165	Quality of Life - Home fun limit activity past week scale	The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)
F0024-C02026	C02026	Study drug dose unit of measure UCUM code	Code that represents the dosage unit of measure of the study drug administered	Supplemental	Study Drug Dosing	False	General (For all diseases)	General (For all diseases)
F0010-C00706	C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F1055-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F0016-C00033	C00033	Race USA maternal category	Race(s) the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	General (For all diseases)	General (For all diseases)
F0005-C14123	C14123	Country of residence name	Country where the participant/subject currently lives	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F1055-C18719	C18719	Imaging slice orientation type other text	The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	General (For all diseases)	General (For all diseases)
F2055-C21269	C21269	Quality of Life - Socialize ability family disappointment past week scale	The scale which represents the extent to which the participant felt that their family was disappointed in their ability to socialize with them in the past 7 days, as part of Neuro-QOL Satisfaction with SRA	Supplemental	Neuro-QOL Adult Bank - Satisfaction with SRA	True	General (For all diseases)	General (For all diseases)
F2048-C21173	C21173	Quality of Life - Social communication maintanence trouble past week scale	The scale representing how often the participant had trouble keeping in touch with others in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA	Supplemental	Neuro-QOL Adult Bank - Ability to Participate in SRA	True	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.