CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 869
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20792 Quality of Life - Uneasiness assessment past week scale

The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C56466 PROMIS - Pain Behavior when pain isolate from others scale

Scale related to the individual feeling as if when in pain he/she isolated him/herself from others in the past 7 days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
C17811 Imaging phase partial Fourier value

Value of the phase partial Fourier ratio, if used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C20761 Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance time spent satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21164 Quality of Life - Friend visit limit time past week scale

The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C02023 Study drug dose unit of measure

Unit of measure of the study drug dosage administered

 Supplemental Study Drug Dosing False General (For all diseases) General (For all diseases)
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C00032 Race USA paternal category

Race(s) the participant/subject's father most closely identifies with

 Supplemental Demographics False General (For all diseases) General (For all diseases)
C21197 Quality of Life - Shyness assessment past week scale

The scale which represents how often the patient felt shy in the past 7 days, as part of Neuro-QOL Anxiety

 Supplemental Neuro-QOL Adult Bank - Anxiety True General (For all diseases) General (For all diseases)
C56474 PROMIS - Pain Behavior when pain thrash scale

Scale related to the individual feeling as if when in pain he/she thrashed, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
C18718 Imaging scanner strength value type other text

The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C21268 Quality of Life - Household chore satisfaction ability past week scale

The scale which represents the extent to which the participant was satisfied with their ability to do household chores and tasks in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21172 Quality of Life - Social activity outside home limit complete past week scale

The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C54690 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health mental health rate scale

Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health

 Supplemental PROMIS Item Bank v1.2 - Global Health True General (For all diseases) General (For all diseases)
C01708 Lab test performed indicator

Indicator of whether the lab test has been performed on the participant/subject

 Supplemental Laboratory Tests and Tracking False General (For all diseases) General (For all diseases)
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C21249 Quality of Life - Satisfaction life many area interest recent assessment scale

The scale representing how often the participant was interested in many areas of their life lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
C12772 Electrophysiology long exercise test post-exercise compound muscle action potential measurement

Compound muscle action potential (CMAP) measurement recorded post- long exercise

 Supplemental Electrophysiology False General (For all diseases) General (For all diseases)
C02202 Off study date and time

Date (and time, if applicable and known) when participant/subject completes study or is prematurely withdrawn from study (i.e., is not being followed and will not receive intervention/treatment)

 Supplemental Study Discontinuation/Completion False General (For all diseases) General (For all diseases)
C56482 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference enjoyment life scale

Scale which represents how often the participant felt pain interfered with the enjoyment of social activities over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 Supplemental PROMIS Item Bank v1.1 - Pain Interference False General (For all diseases) General (For all diseases)
C21276 Quality of Life - Community activity ability other people disappointment self-assessment past week scale

The scale which represents the extent to which the participant felt that others were disappointed in their ability to do community activities in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

 Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA True General (For all diseases) General (For all diseases)
C21180 Quality of Life - Work usual abililty complete past week scale

The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

 Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA True General (For all diseases) General (For all diseases)
C56432 PROMIS - Pain Behavior pain irritable scale

Scale related to the individual feeling as if when he/she was in pain he/she became irritable in the past seven days, as part of the PROMIS Pain Behavior

 Supplemental PROMIS Item Bank v1.1 - Pain Behavior False General (For all diseases) General (For all diseases)
C10584 Imaging phase resolution percentage value

The value in percent of the phase resolution used in imaging acquisition

 Supplemental Magnetic Resonance Imaging (MRI) False General (For all diseases) General (For all diseases)
C21257 Quality of Life - Satisfaction confident recent assessment scale

The scale representing how often the participant felt confident lately, as part of Neuro-QOL Positive Affect and Well-Being

 Supplemental Neuro-QOL Adult Bank - Positive Affect and Well-Being True General (For all diseases) General (For all diseases)
Displaying 76 - 100 of 869

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.