F1053-C18690
C18690
Imaging analysis software other text
The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study
Supplemental
Diffusion Tensor Imaging (DTI)
False
General (For all diseases)
General (For all diseases)
F2049-C20792
C20792
Quality of Life - Uneasiness assessment past week scale
The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F2055-C21280
C21280
Quality of Life - Daily routine performance disappointment past week scale
The scale which represents the extent to which the participant was disappointed in their ability to perform their daily routines in the past 7 days, as part of Neuro-QOL Satisfaction with SRA
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2048-C21164
C21164
Quality of Life - Friend visit limit time past week scale
The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2054-C21261
C21261
Quality of Life - Satisfaction close ideal life recent assessment scale
The scale representing how often the participant felt in most ways their life was close to their ideal lately, as part of Neuro-QOL Positive Affect and Well-Being
Supplemental
Neuro-QOL Adult Bank - Positive Affect and Well-Being
True
General (For all diseases)
General (For all diseases)
F2049-C21197
C21197
Quality of Life - Shyness assessment past week scale
The scale which represents how often the patient felt shy in the past 7 days, as part of Neuro-QOL Anxiety
Supplemental
Neuro-QOL Adult Bank - Anxiety
True
General (For all diseases)
General (For all diseases)
F2056-C20816
C20816
Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale
The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Sleep Disturbance
True
General (For all diseases)
General (For all diseases)
F2048-C21172
C21172
Quality of Life - Social activity outside home limit complete past week scale
The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA
Supplemental
Neuro-QOL Adult Bank - Ability to Participate in SRA
True
General (For all diseases)
General (For all diseases)
F2055-C20746
C20746
Patient-Reported Outcome Measurement Information System (PROMIS) - Current level friend activity satisfaction past week scale
The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)
Supplemental
Neuro-QOL Adult Bank - Satisfaction with SRA
True
General (For all diseases)
General (For all diseases)
F2053-C21322
C21322
Quality of Life - Movement errand shop ability scale
The scale which represents the extent to which the participant was able to run errands and shop, as part of Neuro-QOL Lower Extremity Function
Supplemental
Neuro-QOL Adult Bank - Lower Extremity Function
True
General (For all diseases)
General (For all diseases)
F2058-C21142
C21142
Quality of Life - Movement pull trouser on ability scale
The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremity
Supplemental
Neuro-QOL Adult Bank - Upper Extremity
True
General (For all diseases)
General (For all diseases)
F2050-C21224
C21224
Quality of Life - Trouble make decision past week scale
The scale representing how often the participant had trouble making decisions in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F2053-C21330
C21330
Quality of Life - Movement uneven surface walk difficulty scale
The scale which represents the amount of difficulty the participant currently has in walking on uneven surfaces (e.g., grass, dirt road or sidewalk), as part of Neuro-QOL Lower Extremity Function
Supplemental
Neuro-QOL Adult Bank - Lower Extremity Function
True
General (For all diseases)
General (For all diseases)
F2059-C20548
C20548
Quality of Life in Neurological Disorders (Neuro-Qol) - No household chore fatigue assessment past week scale
The scale representing how often the participant felt too tired to do household chores in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)
Supplemental
Neuro-QOL Adult Bank - Fatigue
False
General (For all diseases)
General (For all diseases)
F2052-C20691
C20691
Quality of Life - Nothing interest future assessment past week scale
The scale which represents how often the participant felt that he/she had nothing to look forward to in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression
Supplemental
Neuro-QOL Adult Bank - Depression
True
General (For all diseases)
General (For all diseases)
F2059-C20566
C20566
Quality of Life in Neurological Disorders (Neuro-Qol) - Difficulty finish task fatigue assessment past week scale
The scale representing how often the participant had trouble finishing things because they were too tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)
Supplemental
Neuro-QOL Adult Bank - Fatigue
False
General (For all diseases)
General (For all diseases)
F0016-C58677
C58677
Gender identity type
Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth
Core
Demographics
False
General (For all diseases)
General (For all diseases)
F2052-C20728
C20728
Quality of Life - Discouragement future assessment past week scale
The scale which represents how often the participant felt discouraged about the future in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression
Supplemental
Neuro-QOL Adult Bank - Depression
True
General (For all diseases)
General (For all diseases)
F2057-C21308
C21308
Quality of Life - Stigma illness difficult maintain cleanliness recent assessment scale
The scale representing how often it was hard for the participant to stay neat and clean because of their illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2050-C21200
C21200
Quality of Life - Read follow complex instruction difficulty scale
The scale which represents the amount of difficulty the participant currently has in reading and following complex instructions (e.g., directions for a new medication), as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F0017-C18740
C18740
Off study intervention prematurely other text
The free-text field related to 'Off study intervention prematurely reason' specifying other text. Primary reason participant/subject discontinued study intervention before planned end of study
Supplemental
Study Discontinuation/Completion
False
General (For all diseases)
General (For all diseases)
F2052-C20739
C20739
Quality of Life - Emotional exhaustion assessment past week scale
The scale which represents how often the participant felt emotionally exhausted in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression
Supplemental
Neuro-QOL Adult Bank - Depression
True
General (For all diseases)
General (For all diseases)
F2057-C21316
C21316
Quality of Life - Stigma illness lost friend recent assessment scale
The scale representing how often the participant lost friends by telling them that they have this illness lately, as part of Neuro-QOL Stigma
Supplemental
Neuro-QOL Adult Bank - Stigma
True
General (For all diseases)
General (For all diseases)
F2050-C21208
C21208
Quality of Life - Simple mistake more easily past week scale
The scale representing how often the participant made simple mistakes more easily in the past 7 days, as part of Neuro-QOL Cognitive Function
Supplemental
Neuro-QOL Adult Bank - Cognitive Function
True
General (For all diseases)
General (For all diseases)
F0005-C21122
C21122
Subject home phone number
The home phone number of the subject/participant
Supplemental
Participant/Subject Contact Information
False
General (For all diseases)
General (For all diseases)